Tabi, who has spinal muscular atrophy Type 2 and uses a powered wheelchair, is a 35 year-old musician from New York City. She began singing to exercise her weakened lungs and writes about the physical and social obstacles she faces.
She is already an established performer, having opened the first ever Annual NYC Disability Pride Parade in 2015, followed a year later by her own show, ‘A Concert on Life, Love and Being Different’. In 2017, this show sold out at the Rockwood Music Hall. Tabi has also performed at the Prudential Center and Brooklyn Dodgers stadium.
Her self-penned debut album entitled, ‘I Wrote Life’ covers numerous musical genres and is both uplifting and poignant. With soulful, catchy melodies, this impressive first outing demonstrates artistic skill and authenticity.
The album was produced at Dubway studios by Russell Castiglione, who previously recorded Trey Songz and Norah Jones.
“Producing this album was like helping her tell her story, her struggles, and her achievements to the world and that was very humbling.” ~ Russell Castiglione
It was master engineered by Dave McNair, who has worked on albums by Maroon 5, Cyndi Lauper and the legendary David Bowie !
“Tabi puts her life into her songs. It’s refreshing to hear an artist being so real in their work.” ~ Dave McNair
Tabi is a talented lyricist and storyteller with a distinctive tone and impressive vocal range. The album is a well-crafted, subtle infusion of R&B, rock, folk, jazz, blues, country, and dance, with a notable 90s pop vibe.
Each track is a candid representation of the different elements of her life. Though revealingly autobiographical, it is also highly relatable, owing to universal themes such as love and loss. The songs ‘I Won’t Hide‘ and ‘I Am Able‘ reveal deep insights about falling in love and healing after a broken heart.
The self-penned album is optimistic and motivational, with songs such as ‘Keep Rolling On‘ inspiring strength and hope in the face of adversity.
The title track ‘I Wrote Life‘ recounts a specific childhood memory, which summarises Tabi’s attitude to life…
“I remember as kids the teacher would say, write on the board a word today, so then everyone wrote their favourite thing, and there I was just imagining, how great it would be to live long and happily”
Tabi, who has SMA Type 2, on her debut album, ‘I Wrote Life’
Tabitha ‘Tabi‘ Haly is a 35 year-old singer-songwriter from New York City. She has Spinal Muscular Atrophy Type 2, a progressive condition, causing muscle weakness and contractures.
Tabi cannot walk and therefore uses a powered wheelchair for mobility. She is now unable to use her hands to feed herself and uses voice dictation software. With 24/7 support from “home health aides” and physiotherapy to maintain as much strength as possible, Tabi leads a highly proactive lifestyle.
I recently had the pleasure of talking with Tabi about her music career and debut album entitled, ‘I Wrote Life’, (released January 2019).
Tabi, what and who are your biggest music influences and why?
I grew up listening to classic rock, pop and R&B, but I appreciate all genres. I enjoy catchy, soulful melodies, so that has heavily influenced the songs on my album. I am most inspired by artists who write their own songs because that is what I like to do. I love timeless songs and I feel motivated to write when I hear something that I wish I had written myself. I also admire artists who write about personal experiences.
I love Mariah Carey because she writes songs that touch upon insecurities and feeling like an outcast. She writes about her faith and she has clever lines and an impeccable vocabulary. I also love singer-songwriters such as Anna Nalick, Sara Bareilles, Christina Perri, and Jason Mraz. They write about love and heartbreak, which I can relate to.
I also admire a wide vocal range because it is fun to sing songs that are vocally challenging. That is when my R&B influences come into play. It’s really enjoyable to improvise and jam along. I like to challenge myself in general, so I definitely apply that to my music in terms of the lyrics, melody, and vocal styles.
How would you describe your debut album?
I would describe my album as real and soulful. I allowed myself to be vulnerable to reveal my struggles and hopes regarding my disability, love, and life in general. The different subjects lend to the spectrum of dark and light tones.
My album is also fun, diverse, and uplifting! There are a lot of upbeat, empowering songs. People like to dance to them, and it was definitely a blast recording them.
The album is diverse because it crosses multiple genres including R&B, pop, blues, and reggae. It was difficult to select which songs to put on this debut album. Ultimately I wanted to make sure there was something in there for everybody. The order of the tracks matters to me because it tells a story and hopefully feels like you are being taken on a memorable and moving journey.
How autobiographical is the album, and why was it important to you to write the songs yourself?
This album is my baby! I know people use that term a lot in reference to personal projects, but I intentionally released it on my 35th birthday. At this age, many women, myself included, start to worry if they have not yet had a baby.
SMA presents challenges in every part of my life, but I am highly ambitious and set out to conquer my goals. I haven’t yet had a baby, so until then, this album is my baby. As an artist, it is my portfolio.
This album epitomises all that I have accomplished thus far; buying my own home, getting through college via financial aid and scholarships, having a successful full-time career that allows me to be financially independent, owning my own wheelchair accessible van, volunteering regularly, helping implement change for people with disabilities, writing and managing my music, managing my home health aides, being a motivational speaker, and being able to perform throughout New York City at cafés, bars, church, and schools.
As great as this is, it does cause alot of stress, sweat and tears! So I hope people enjoy the album and heed the message that faith and hard work have afforded me the life I have. This allows me to remain positive and to inspire myself and others.
Is important to you to inspire other disabled people who may have musical aspirations?
It is, especially since we are now at a time where there are so many groundbreaking opportunities. A few years ago, I saw many people with disabilities acting on Broadway, which took my breath away and really inspired me to continue doing what I’m doing. I would love to inspire, or better yet, collaborate with other musicians with disabilities.
During the bridge of my song ‘keep rolling on‘ I sing, “there’s so much left to change, more than we even think. More face in media, presence in arenas”.
Have you faced any opposition, challenges and/or stigma on your journey to becoming a musician, due to your disability?
Surprisingly, the biggest challenge is sometimes getting onto the stage to perform! Most stages are not wheelchair accessible, so I have to be prepared for that. Another major challenge is having less live music venues to choose from because not all of them are wheelchair accessible.
How do you overcome these obstacles?
In the early days, I didn’t want that to be an issue or a dealbreaker when pitching to venues to book a show. So I would have my band members and friends lift me in my wheelchair on and off the stage. I have a powered wheelchair that weighs at least 300 pounds! So that was a lot to ask, and I am thankful for the support. This still happens sometimes, but I am now more confident about asking venues to consider investing in a ramp.
There are still the same challenges surrounding the inaccessibility of venues, both for the performers and attendees. I think this is just one of many accessibility issues that exists and for which we need to implement improvements.
You were the opening performer at the first ever Annual NYC Disability Pride Parade in 2015 to celebrate the ADA’s 25th anniversary. How did that make you feel?
That was such an amazing feeling! I had just started using my wheelchair again after having been stuck in bed for a few months due to ill health. So this experience was a huge comeback and it was an honor to be a part of this event. I have to reflect on this sometimes and remember how privileged I was to perform outside, in front of so many people, during the first parade specifically for people with disabilities.
I would like to thank the lovely Tabi for taking the time to answer my questions. Her brilliant debut album, ‘I Wrote Life’ is available to purchase and download NOW!
Resource Allocation: A classic medical ethics topic that often rears its head in the inevitable reality of working in a cash-strapped public healthcare system.
Should the NHS fund this new expensive treatment for a rare disease?
Should the government pay for a new experimental cancer treatments?
Should X procedure be on the NHS, or Y?
The list is endless.
This blog covers a few basic ideas and concepts for you to broaden your understanding of why things are done as they are, enhance your opinion and help you think of the bigger picture.
One way of analysing resource allocation is using a utilitarian approach. Utilitarianism describes the moral theory that the most moral action is that which maximises the happiness (or in this instance healthiness) of a population. This seems quite a nice logical and fair systematic approach, but has one major drawback.
How do you quantify the benefits gained from a specific treatment?
Fortunately, Alan Williams, a health economist calculated a measure for doing this – the Quality Adjusted Life Year. This system described not only the length of life a specific treatment can give a patient, but also factors in the subjective quality of that life.
Interestingly, some of the ‘best’ treatments by this system including cataract surgery and hip replacements, owing the massive improvement in life these can bring (even though they are rarely viewed as life extending). However, despite quantifying the ‘best value’ treatments, this system still has its drawbacks.
Firstly, many argue that this system ignores both the old, and the chronically ill. The old will have fewer ‘life years’ per treatment and the chronically ill will have a lower ‘quality of life’ per treatment by this system, and will thus lose priority in this system.
This a great concept to think about as many new drugs are for specific diseases, which are often rare and chronic, or those which affect the elderly. Secondly, ‘quality of life’ is a highly subjective term, and, although this system goes someway to quantify it, the end result is still a subjective rating score.
Another way of analysing these topics are through an egalitarian approach. This theory states that resources should be distributed equality unless an unequal distribution would work to everyone’s advantage. However, in reality, there is not unlimited funding and therefore equality of distribution means that expensive treatments (the new drugs often featuring questions) could not justifiably be funded.
This approach does promote a decent minimum standard of care (good for everyone) and some argue that more expensive treatments can be funded elsewhere. For example, charities and private companies could find a place in an egalitarian healthcare system to fund more niche treatments.
Another viewpoint worth nothing (though one which many, especially in the UK, would be against) is that of libertarianism. This system states that healthcare should follow individual liberties and free market principles – i.e to be privatised. This is an interesting viewpoint to discuss, but, given the many drawback of private healthcare and the NHS in the UK, it’s not one we in the UK really consider.
So, there we have it, a few basic approaches to the classic question of ‘should we fund this expensive new drug’.
This guest blog post is provided courtesy of writer Adi Sen, from the website UniAdmissions.
Disclaimer: The views and opinions expressed in this article are those of the author (UniAdmissions), and do not necessarily reflect the official policy or position of myself or any other organisation.