Wench Wars | Lockdown Playlist

1, 2, 3, 4, I declare a WENCH WAR!!

My good friend and fellow wheelie wench, Lucy Hudson, and I are battling it out once again!

Here is the long-awaited sequel to our first Wench War, in which we presented our top 5 Disney villains.

Top 5 Lockdown Songs

This was a challenge!

There are soooo many songs that in some way represent life in lockdown, it was difficult to limit the list.

1. The Police, Don’t Stand So Close To Me (1980)

When all this Corona craziness hit home, people panicked. Understandably so.

Don’t touch me, don’t cough near me, don’t breathe on me, don’t look at me!! 😱

2. Queen Ft. David Bowie, Under Pressure (1981)

And so lockdown begins. Society starts to feel the pressure. People are unable to go to work, parents are home schooling, families are forced apart and the NHS is put under great strain.

3. Queen, I Want To Break Free (1984)

The days turn to weeks. We get up, we eat, we go to bed. We’ve basically adopted the dog’s lifestyle!

Everyone is bored and frustration is setting in. For those like me who are considered high risk, the four walls of home become more of a prison than a sanctuary.

4. Peter Gabriel, Don’t Give Up (1986)

Weeks turn to months. We’ve lost track of what day it is. We’re lethargic, lonely, lacking in motivation, low in mood and missing our loved ones.

When will this come to an end…?

5. Fleetwood Mac, Don’t Stop (1977)

There is finally some light at the end of the tunnel! It seems we’ve hit the peak and restrictions are slowly being lifted. We are far from the finish line but we’re holding on to hope.

“Don’t stop thinking about tomorrow
Don’t stop, it’ll soon be here
It’ll be, better than before,
Yesterday’s gone, yesterday’s gone”


Lucy’s Top 5 Lockdown Songs

Recommended Reads

Since we’re all still stuck at home, twiddling our thumbs, I thought I’d suggest some reading material for you.

The six books I have chosen focus on the themes of disabilitymental health, positive thinking, overcoming adversity, trauma, and recovery.


(Left - Right) 'Defiant' by Janine Shepherd, 'Wheels of Motion' by Justin Brown and Lucy Hudson, and 'True Grit and Grace' by Amberly Lago
(Left – Right) ‘Defiant’ by Janine Shepherd, ‘Wheels of Motion’ by Justin Brown and Lucy Hudson, and ‘True Grit and Grace’ by Amberly Lago

‘Defiant’ by Janine Shepherd

A few years ago, I had the privilege of interviewing this former Olympic hopeful who beat the odds and transformed her life after suffering a horrific accident.

Janine Shepherd radiates energy, enthusiasm and an endearing wit. Her memoir is a must-read!


‘Wheels of Motion’ by Justin Brown & Lucy Hudson

Some of you may know that Lucy is a good friend of mine. Like me, she is a non-ambulatory wheelchair-user with a form of muscular dystrophy.

‘Wheels of Motion’ is a poetry anthology unlike any other. If you live with a disability yourself, I highly recommend you check this out! (Available on Amazon).


‘True Grit and Grace’ by Amberly Lago

Amberly Lago is another remarkable, kind and generous woman I was able to interview following the release of her memoir, ‘True Grit and Grace: Turning Tragedy into Triumph’.

Fitness fanatic, Amberly’s life was turned upside down following a debilitating motorcycle accident in 2010, leaving her with significant nerve damage and lifelong chronic pain.

She now devotes her life to helping others.


(Top Left - Right) 'Things Get Better', and 'Beautiful'. (Bottom) 'Start Your Day with Katie'. All by author, Katie Piper.
(Top Left – Right) ‘Things Get Better’, and ‘Beautiful’. (Bottom) ‘Start Your Day with Katie’. All by author, Katie Piper.

Acid attack victim, Katie Piper, is now a well-known media personality, activist, documentary maker, charity founder and mother.

She has achieved so much since her brutal assault in 2008, which left her partially blind and with full thickness burns. Katie has endured over 200 operations and invasive treatment to ensure her recovery. She really is a true inspiration!

I read Katie’s first book, ‘Beautiful’, around eight years ago. It’s a real eye opener! Yes, it is shocking and distressing, but also incredibly motivational. I highly recommend this book to anyone and everyone.

Muscular Dystrophy Q&A

1. What is it?

Muscular Dystrophy is an umbrella term for a group of muscle diseases.

There are nine forms (see image above), which then divide into many more sub-types.

The various forms of MD differ significantly in which areas of the body are affected, severity, rate of progression, and the age of onset.

Some are born with the condition, while others do not display symptoms until adulthood.

2. What causes it?

A faulty or mutated gene. It is therefore, a genetically inherited condition.

If one or both parents have the mutated gene that causes MD, it can be passed on to their children. However, this doesn’t necessarily mean the children will have the condition. But they may be carriers.

I have a rare form of congenital (from birth) MD, which is an autosomal recessive disorder, meaning you inherit two mutated genes, one from each parent – as shown in the image below.

Congenital Muscular Dystrophy ~ Autosomal recessive inheritance
Congenital Muscular Dystrophy ~ Autosomal recessive inheritance

I am the only known member of my family to be affected by muscular dystrophy. My unaffected parents (both carriers) had never heard of the condition, and so, it was a huge shock to receive my diagnosis at the age of 4.

3. What form do you have and how does it differ from other types of muscular dystrophy?

I have a rare form of congenital (from birth) MD, called Ullrich.

I wrote a whole post about my life with Ullrich congenital muscular dystrophy.

But in summary, it is slowly progressive, causes joint contractures, and does not affect the heart or intelligence.

4. Can people with MD have babies?

The simple answer is YES! MD doesn’t affect fertility in any way.

My good friend Fi Anderson has a rare form of MD, and is a mother to two daughters, neither of whom have MD. Check out Fi’s blog here!

5. Can a baby be tested for it in the womb or only after birth?

Prenatal diagnosis is possible for some forms of muscular dystrophy, but not all. Non-invasive testing can be carried out from 7 weeks into a pregnancy.

If one or both parents are carriers of a particular muscle-wasting condition, there is a risk the child will be affected.

It is advisable to contact a geneticist for further information and guidance.

6. What do you wish people unfamiliar with MD knew about it?

I wish there was much more awareness of the condition, and the fact that there are many varying forms.

Sadly, many people haven’t even heard of it.

Furthermore, those who have tend to associate it with Duchenne (the most common form).

Almost every medical professional I’ve encountered throughout my life has assumed I have Duchenne, which goes to show the lack of familiarity and education.

There is a lot of information, research and charitable funding for Duchenne MD, which is fantastic. But, there is very little for other forms, which is, I have to admit, rather frustrating.

This means that people living with lesser-known forms, that are just as debilitating as Duchenne, do not receive the same support.

7. How has your life been impacted?

UCMD impacts every part of my life.

I became completely non-ambulant at age 10, and I now use a powered wheelchair.

I have severe contractures in all of my joints (knees, hips, elbows, wrists), and a severe scoliosis (curved spine). As a result, my balance is very poor.

UCMD affects my respiratory function. 7 years ago it became necessary for me to use a BiPAP machine (non-invasive ventilation) nocturnally.

For me, a common cold can very quickly develop into a serious respiratory illness, such as pneumonia (which I’ve had numerous times).

I experience chronic fatigue due to the progressive muscle-wasting and my squashed torso, which prevents expanditure of my lungs.

Illustration by Jessica from The Disabled Life ~ http://thedisabledlife.ca/
Illustration by Jessica from The Disabled Life ~ http://thedisabledlife.ca/

I try to live as “normal” a life as possible, having attended university and learnt to drive (though this is no longer possible as my condition has deteriorated).

8. Pros and Cons of living with UCMD?

The cons of my condition are mostly listed in the previous answer. The most bothersome of these are the respiratory decline and chronic fatigue.

You might think being unable to walk would be the most frustrating thing. And while I do wish I could walk, jump and run, this has never really bothered me all that much. It is what it is, and you learn to adapt.

The pros I would say, include the network of people I have in my life, people I wouldn’t know if it weren’t for my condition.

I have made some amazing friends through blogging and living with muscular dystrophy. For this, I feel incredibly fortunate and thankful.

Other pros include my Motability WAV (wheelchair accessible vehicle), blue badge for free parking, and being able to skip to the front of the queue at tourist attractions!

My Motability WAV
My Motability WAV
9. Has it changed/got worse over time?

Yes, my condition is progressive and life-limiting. My symptoms have got worse over time.

The term life-limiting can, understandably, be scary for many to hear. While I don’t expect to live to be old and wrinkly, I have no plans to pop-off anytime soon!

After all, if you’re a smoker you are limiting your life expectancy!

As a child, I could walk short distances wearing custom-made leg splints.

Joint contractures and the severity of my scoliosis has increased.

My lung function is significantly worse as an adult.

10. What are some of the common misconceptions?

There are many! Here are just a few assumptions…

I have family members with the same condition (I don’t).

I can’t have children.

I can’t have sex or a loving relationship (some even assume I wouldn’t want to).

Many assume I can walk, even when I try to explain I am completely non-ambulant.

People think I take lots of pills and potions – if only there was a miracle cure! I’d take it in a heartbeat.

For more examples, check out this blog post I wrote all about societal preconceptions related to being a wheelchair-user.


Related Blog Posts:

Muscular Dystrophy | A Guide For Parents

My Life with Ullrich Congenital Muscular Dystrophy

Scoliosis | Why I chose not to have a spinal fusion

Showing Gratitude

In my previous post, I suggested writing a list of all the positive things in your life.

We’re currently experiencing tough times, but there’s still much to be thankful for.

With that in mind, here’s my list of gratitude…

1. Video calls with my brother and nineteen month-old nephew. “My no go nursery, Cazzy!” He’s quite happy going on “doggy walks” with Daddy.

2. People are realising the value of the NHS and care workers.

3. Receiving messages, calls, letters and cards from friends.

4. Blue skies, sunshine and warm weather to lift spirits.

5. Nature and Spring time. Venturing outside and exploring nature is great for improving our mood and mental health.

6. Community spirit – everyone is playing their part by volunteering, working and offering practical and emotional support.

7. My wimpy Labrador is much happier now that we’re not receiving visitors. No people – Yay!!

8. This lockdown period provides time to rest, sleep, think, plan and do the things I have been putting off, like decluttering my bedroom.

9. Environmental pollution is reducing, air quality is improving in cities, and the planet is slowly starting to recover.

10. I am fortunate to have a safe, comfortable home and a caring, loving family.

11. Finally, quarantine means there’s no pressure or expectation to shave or wax my hairy lady bits! Girls, you know what I’m talking about!

What’s on your list…?

Lockdown | Positive Thinking

I’ve read many trivial complaints on social media about the Coronavirus lockdown.

From park, pub and salon closures, postponed gigs and concerts, to cancelled botox, filler and wax appointments. Some are even moaning because they can’t race around and show off in their flashy cars. What a shame!

I appreciate we all have our own interests, outlets, coping mechanisms and methods of self-care. We all want to look and feel our best, and we all need somewhere to escape to.

But please, let’s try and keep things in perspective.

The current situation isn’t permanent. Of course, it’s tedious, stressful and frustrating, and will impact some considerably more than others. But it will pass and “normal” life will resume.

People on the frontline are literally risking their lives to help others – complete strangers. They are physically and mentally exhausted, yet keep going.

Carers continue to support the most vulnerable in society, despite the risk.

Key workers carry on working to ensure society functions and people are provided for.

On the upside, lockdown provides an opportunity for families to unite, spend quality time together and talk more.

But for others – men, women and children – being stuck in close proximity, unable to escape, can be a living hell.

The National Domestic Abuse helpline has seen a 25% increase in calls and online requests for help since lockdown began!

We all have problems and we are all entitled to feel and express what we need to in order to get through these trying times. Your experiences and frustrations are valid.

But please, keep in mind the medics, carers, key workers, the elderly, disabled, those living with domestic abusers and those separated from their loved ones.

Try to appreciate what you do have – for example, your health, home, and hope for the future.

When you’re feeling low, maybe write a list of all the positive things in your life and focus on that rather than the things you are currently missing out on.

Quote from Bob Dylan, "keep on keeping on"
Quote from Bob Dylan, “keep on keeping on”

Decisions & Difficult Discussions

As a powerchair-user with congenital muscular dystrophy, I am at high-risk of developing serious complications should I contract Coronavirus.

So, I’m kinda hoping I don’t!

As much as I love them and couldn’t be without them, my folks have adopted a rather casual attitude towards the whole situation, disregarding it as, “just one of those things”.

I won’t sugar-coat, there have been arguments and tears of frustration. It’s pretty tense and stressful in our house at the moment, as I’m sure it is for many.

My big bro called the ‘rents a few times to enforce the importance of social distancing. It is comforting to have some back-up, especially coming from my great defender!

Sometimes, I do feel like I’m banging my head against a brick wall.

It was only on Saturday night that my Mom announced, “I’ve never known anything like this in my lifetime”.

It really was a light-bulb moment! The seriousness of the current situation seemed to finally hit home.

My brother is a teacher, his wife a business woman, and my two year-old nephew, who I see every week, attends nursery. They are therefore in contact with many different people on a daily basis.

Naturally, this lead to discussions about what we do going forward. He basically told me, “it’s your call!”.

Now, I’m not remotely materialistic and am somewhat an introvert. Missing out on holidays, going to the cinema, to restaurants, pubs and shops doesn’t particularly bother me. It isn’t forever.

All that really matters to me is the people I love – soppy cow! To be without them really is a killer!

It’s a case of weighing up the risks, being safe and sensible but also not denying ourselves life itself.

So, this week, instead of having my gorgeous nephew at home with us, we’re going for a woodland walk. We will be enjoying each other’s company, while keeping a “safe” physical distance.

My nephew on a woodland walk
My nephew on a woodland walk
My nephew on a woodland walk
My nephew on a woodland walk
My black Labrador walking down a country lane
My black Labrador walking down a country lane

It will, no doubt, be a challenge with an affectionate little boy who doesn’t understand what’s going on (and, thank feck he doesn’t!).

But, at the end of the day, it is what it is. We’ve all got to make do and get on with it, in the best way possible.

A motivational quote from Frida Kahlo
A motivational quote from Frida Kahlo

Coronavirus | Thoughts from a Disabled Pixie

Needless to say, we are in the midst of uncertain and unprecedented times.

Photo of a card reading, 'keep hanging on in there' (left) and a medical face mask (right).
Photo of a card reading, ‘keep hanging on in there’ (left) and a medical face mask (right).

Everywhere we look, we are bombarded with the latest news regarding Covid-19; on the TV, radio, newspapers and the Internet.

While most is factual information from reliable sources, there is also plenty of unhelpful rumour and speculation, particularly on social media.

Personally, I don’t find it beneficial to watch the News three times a day, unlike my folks!

We all know by now what we should and shouldn’t be doing to limit the spread and keep ourselves and each other safe.

Guidelines on social distancing during the Coronavirus pandemic.
Guidelines on social distancing during the Coronavirus pandemic.

Why add to the stress and anxiety? I’d rather focus on other things; happier things!

Of course, the situation affects everyone in some way; domestically, financially, their work, education, physical and mental health.

This is an incredibly frightening time for many, myself included. I am considered high-risk, since I have a progressive muscle-wasting condition that affects my breathing.

A Friendly Reminder from a Delicate Little Pixie

Though we all must now adapt and change our way of life somewhat, it’s important to remember this is only temporary. Things will improve.

I’ve heard people complain about the restrictions; mostly young, fit, able-bodied people. Yes, it’s a pain in the fat ass! But it isn’t forever.

Funny meme about the Coronavirus featuring the character Jay from The Inbetweeners.
Funny meme about the Coronavirus featuring the character Jay from The Inbetweeners.

Also, please be aware that many disabled and chronically ill people are repeatedly forced into prolonged periods of self-isolation throughout their lives. Plans are often cancelled last minute due to poor health. This isn’t new to them.

So, before you complain because you can’t go out partying with your mates, or to the pub, please consider those for whom limitation and isolation is a way of life.

Final Thoughts

Show your thanks and appreciation for the NHS and those working in health and social care.

Illustration of NHS healthcare workers being saluted by Superman.
Illustration of NHS healthcare workers being saluted by Superman.

Be mindful of the most vulnerable in society, and help out if you’re able to.

Print-out for those wanting to help anyone self-isolating due to Covid-19.
Print-out for those wanting to help anyone self-isolating due to Covid-19.

Please don’t panic buy or stock pile. This isn’t the apocalypse, people!

Where possible, please support local businesses.

Be sensible, be safe, be rational.

This too shall pass…

World Book Day

Thursday 5th March 2020

My good friend and fellow wheelie wench, Lucy Hudson, is a published author!

Lucy, who also has a form of muscular dystrophy, is genuinely one of the most kind, caring and clever people I have ever known.

As today is World Book Day, I thought I would encourage you all to check out the two poetry anthologies she co-wrote with writer, Justin Brown.

Front cover of 'Wheels of Motion', a poetry anthology by Justin Brown and Lucy Hudson
Front cover of ‘Wheels of Motion’, a poetry anthology by Justin Brown and Lucy Hudson
Back cover of 'Wheels of Motion', a poetry anthology by Justin Brown and Lucy Hudson
Back cover of ‘Wheels of Motion’, a poetry anthology by Justin Brown and Lucy Hudson

Click here to buy!

Front cover of 'On The Road To Somewhere', a collection of poems by Justin Brown and Lucy Hudson
Front cover of ‘On The Road To Somewhere’, a collection of poems by Justin Brown and Lucy Hudson
Back cover of 'On The Road To Somewhere', a collection of poems by Justin Brown and Lucy Hudson
Back cover of ‘On The Road To Somewhere’, a collection of poems by Justin Brown and Lucy Hudson

Click here to buy!

 Related Blog Posts:

Wench Wars | Disney Villains

Book Review | Paraplegic, Sports Woman & Novelist

Book Review | ZENKA

The Girl on the Train: British Book vs. American Adaptation

Theatre Review | Birmingham Hippodrome

Product Review | Independent Living

I was recently sent a few products to try, by the lovely folk at Manage At Home and PETA [UK] LTD.

The Easi-Grip kitchen items are designed to help older people, and those like me with a disability, prepare and cook food independently.

Easi-Grip Food Preparation Board

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

This stylish food preparation board, made from sustainable Rubberwood, is a multi-purpose, top quality kitchen aid.

I was so impressed with this piece! It is really attractive and doesn’t look at all like a standard disability aid.

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

It is designed for those with weak hand function, including impaired grip, poor hand control and tremors.

Slicing a sweet potato using the multi-purpose Easi-Grip food prep board
Slicing a sweet potato using the multi-purpose Easi-Grip food prep board

Using only one hand, the Easi-Grip board allows you to grate and slice food effortlessly. The spiked area ensures food is kept in place for peeling and cutting.

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

Several essential items all-in-one: Stainless steel fine/coarse graters, slicers, collecting bowl, spiked area, and long-lasting wooden board.

I have muscular dystrophy ~ contractures, poor grip, and very little strength. Despite this, I found the Easi-Grip food prep board really easy to work with, and a huge asset. I no longer need to ask for any help, which is a big deal for me!

My mum, who has osteoarthritis, loves this equally as much as me! Suffering with joint pain and stiffness, she found it significantly easier to use than regular kitchen tools.

Easi-Grip Knives

Easi-Grip Knives 1. Bread knife 2. Carving knife 3. All purpose knife
Easi-Grip Knives 1. Bread knife 2. Carving knife 3. All purpose knife

This popular trio of knives has undergone a recent design revamp – the ergonomic handles are now thicker, making them easier and more comfortable to use.

The bright lime green areas indicate the “soft-feel” non-slip areas, as well as making them a bit more modern and aesthetically appealing compared to standard kitchen knives!

Demonstration of the Easi-Grip knife being used to cut a vegetable on the Easi-Grip food prep board
Demonstration of the Easi-Grip knife being used to cut a vegetable on the Easi-Grip food prep board

I would highly recommend all of these products to anyone, regardless of (dis)ability. They are top quality items and I am so thankful to Manage At Home and PETA [UK] LTD for sending them to me. I love to cook, and these kitchen aids have made life a little easier for me.

*Disclaimer*

This post is in collaboration with Manage At Home and PETA [UK] LTD. The products were gifted to me in exchange for an honest review. Opinions expressed are entirely my own.


Many thanks to Manage At Home and PETA [UK] LTD

Related Blog Posts:

Product Review | Bellavita Bath Lift from Manage At Home

Memory Lane | Child of the 90s

Though I still look about twelve (woo! 🙄), I’m actually now the grand old age of 31; A true child of the 90s.

A friend and I were recently gabbling away and reminiscing about things from our childhood.

Some were great! And others were…not so great.

Do you remember any of these..?

Babyliss Hair Straighteners/Crimpers

Image Description: Babyliss hair straighteners/crimpers from the late 1990s
Image Description: Babyliss hair straighteners/crimpers from the late 1990s

Many years before obscenely priced GHDs became the go-to hair straightener of choice, we had this bad boy!

A multi-purpose hair straightener/crimper, this clumpy contraption took about an hour to reach a lukewarm temperature. We then had to clamp each section for…oh, flippin’ ages!

Quite why we wanted to crimp our hair, I don’t know. But at the time, we thought we looked ace! On reflection…not so much.

Tammy Girl

Image Description: Tammy Girl shop front
Image Description: Tammy Girl shop front
Image Description: Classic Tammy Girl T-shirt
Image Description: Classic Tammy Girl T-shirt

I kid you not; I owned this very T-shirt and many like it, courtesy of the (not at all) classy pre-teen clothing store, Tammy Girl. Oh yeeaah!

Sadly, Tammy is no longer. I can’t think why.

Despite not wearing cool and funky clothes like this now I’m in my thirties, I remain a ‘babe with attitude’. Well, sorta!

Impulse O2 Body Spray

Image Description: Impulse O2 shower gel (left) and O2 body spray (right)
Image Description: Impulse O2 shower gel (left) and O2 body spray (right)

Bloody loved this stuff!! How I miss the lingering, intense scent of ethanol and limes.

Whyyyy it was discontinued, I’ll never know.

BRING IT BACK, IMPULSE!!

We don’t all want to smell of white musk (eau de old lady)!

Girl Talk Magazine

Image Description: Front cover of an issue of Girl Talk magazine from the 1990s
Image Description: Front cover of an issue of Girl Talk magazine from the 1990s

A highly educational read for pre-teen Carrie!

Every issue of Girl Talk came with freebies, like miniature furry photo frames (we all love those, right?), and posters of goats and donkeys.

I do like to lay in bed at night and gaze at a donkey poster, don’t you?

Animal Ark Books

Image Description: A collection of books from the Animal Ark series by Lucy Daniels
Image Description: A collection of books from the Animal Ark series by Lucy Daniels

Now, I had forgotten about these books (sacrilege!), until my mate asked, “did you read those rubbish animal stories that were all the same?”

Yes. Yes, I did.

No disrespect to author Lucy Daniels, but I don’t think she’s ever gonna take down J. K. Rowling with these riveting tales of piglets and pussies.

Blockbuster Video Store

Image Description: Blockbuster video store shop front. "Closing Down" posters shown in the windows
Image Description: Blockbuster video store shop front. “Closing Down” posters shown in the windows

Who remembers VHS? Anyone..? I genuinely miss video tapes and cassettes. You could chuck them on the floor and they’d still be good to go.

What I miss even more is going to Blockbuster on a Friday, after school, to rent a video for the weekend.

Simple pleasures. Happy days.

Woolworths

Image Description: A woman selecting sweets from a Pic'n'Mix display at Woolworths
Image Description: A woman selecting sweets from a Pic’n’Mix display at Woolworths

Need I say anything for this one?!

RIP Woolworths. What has the world come to?!

Kids today are truly missing out.