Purple Tuesday

Purple Tuesday is an International call to action with the aim of improving customer experience for disabled people. It is vital that we, disabled people, are able to access the same services as anyone else.

Purple Tuesday is a year-round initiative that has the power to change lives!

Working together to make businesses and organisations more accessible and inclusive is mutually beneficial.

Facts & Figures

20% of the UK population (around 12 million people) and 15% of the world’s population have some form of disability.

Disabled people make up the world’s largest minority group.

Last year over 750 organisations took part, making a collective 1,500 decisive, practical commitments towards positive change.

The Purple Pound – What is it?

The consumer spending power of disabled people and their families is worth £249 billion and is rising by an average of 14% per annum. Worldwide, the Purple Pound equates to a staggering £2.25 trillion, yet less than 10% of businesses have a targeted plan to access this disability market.

Added Expense of Disability

• Equipment
• Adaptions
• Heating ~ disabled people often feel the cold much more than able-bodied people
• Electric ~ charging technology and equipment such as wheelchairs, non-invasive ventilators (BiPAP/CPAP)
• Extra laundry costs
• Clothing/modifications
• Insurance

Obstacles Disabled People Face when Shopping

• Steps
• Lack of disabled toilets (Changing Places)
• No lifts/lifts broken
• Narrow doorways
• Non-automatic doors (meaning we have to wait for someone to open the door for us)
• Narrow aisles
• Unreachable shelves/items
• Cashpoint/checkout too high to reach
• Physical barriers e.g. ‘Wet Floor’ signs, clothes and other items on the floor
• Poor customer service
• Lack of clear, visible signs
• No audio description available
• Inappropriate lighting, music (too loud) – affects those with sensory disabilities such as Autism
• Overcrowding
• No staff available to assist disabled customers


My good friend and fellow MDBloggersCrew blogger and campaigner Kerry Thompson is now representing Purple Tuesday ~ Follow her to find out more!

Britain’s Got Talent | Disability Representation

Are you a Britain’s Got Talent viewer? If like me, you have tuned in this year, you too may have noticed that the semi-final line-up features a number of diversely disabled acts – more so than previous years.

As a wheelchair-user myself, I am thrilled to see disability increasingly represented and celebrated on such a high-profile primetime TV talent show.

Lee Ridley AKA Lost Voice Guy

Lee Ridley, also known as Lost Voice Guy, is the first act through to the live final, having won the audience vote on Monday night. Hotly tipped to win the competition, Lee 37 from Newcastle, has Cerebral Palsy and is unable to speak. This uniquely speechless comedian uses a Lightwriter – a voice synthesiser, and as he says, “walks with a limp”. He is a BBC New Comedy Award Winner who wears slogan T-shirts depicting his self-deprecating and inclusive sense of humour – his audition shirt read, ‘I’m only in it for the parking’.

Lee Ridley AKA Lost Voice Guy

Lost Voice Guy wowed audiences and judges alike with his witty routines that draw attention to and highlight the humour in disability, thereby breaking down barriers and removing social stigma. The “struggling comedian who also struggles to stand up” joked that he “really is disabled. It’s not just really good acting”.

Robert White

Fellow comedian Robert White who has dyslexia, autism and Asperger syndrome, also made it through to Sunday night’s final with his hilariously quirky musical comedy act. The 41 year-old music teacher from West Sussex describes himself as “the only gay, Aspergic, quarter-Welsh comic on the British comedy circuit”.

Though his audition proved impressive, White really upped his game for Wednesday’s live semi-final, in which he employed natural comedy timing to mock the four judges. Accompanied by a keyboard, Robert White flirted with his “next boyfriend” David Walliams and quipped that Amanda Holden dresses far too young for her age, while Alesha Dixon dresses like a hooker! This was met with unanimous rapturous applause and laughter.

Comedian Robert White

Most notably, Robert directly referenced the sensitivity surrounding his condition during his live act: “I am aware that if you mention autism on stage sometimes audiences can go awkward and silent”. This effectively challenges viewers to consider how they receive and react to those of us with a disability, thus initiating the conversation.

Calum Courtney

This year’s youngest finalist is 10 year-old singer Calum Courtney who has a mild form of autism. Calum sailed through to the final after melting hearts with his reworked rendition of Stevie Wonder’s ‘Isn’t She Lovely’, in tribute to his Mum. He didn’t win the overall public vote, but having made it into the top three, was put through by the judges.

Calum Courtney

Calum was part of the line-up at the NSPCC Winter Charity Ball in aid of the National Autistic Society. His endearing and confident audition performance of Michael Jackson’s ‘Who’s Loving You’ caught the crowd’s attention and earned a standing ovation. It just goes to show that even at such a tender age, autism need not be a barrier to success.

RISE Unbroken

Semi-finalists RISE, a group of young dancers from Manchester, presented two moving performances, though they did not make it through to the grand final. Group member 13 year-old Hollie Booth was caught up in the Manchester Arena bombing at an Ariana Grande concert in May 2017. Hollie’s aunt Kellie was one of 22 people who died as a result of the terror attack.

Manchester dance group RISE

Hollie broke her knee, left foot and was left with nerve damage. She has so far had 11 operations and now has to wear an orthotic and use a wheelchair. She was keen to return to the group and continue dancing despite her trauma and the injuries she suffered. As a mark of solidarity and inclusivity in the face of adversity, all RISE dancers incorporate wheelchairs into their routines. The tearful judges hailed the girls as “inspirational”. In this case, I think the term is justified!

B-Positive Choir

Final mention goes to B-Positive – the official NHS Blood and Transplant choir. The choir consists of 60 singers all of whom suffer from, or are directly affected by, sickle cell disease. Their aim is to raise awareness of the urgent need for blood donation. They sang the “powerful” anthemic hit ‘This is Me’ (a true statement of the importance of diversity). They are hoping for a wild card pass through to Sunday night’s final.

B-Positive Choir

The inclusion of so many disabled acts in this year’s line-up will, I believe, have a positive impact on the disabled community. It suggests and promotes forward-thinking, equality and disability in the mainstream. Furthermore, it inspires open discussion of diversity in all its forms whilst also encouraging society to focus on ability as opposed to inability.

Widespread visibility of disabled talent within the media will naturally be met with questions and curiosity. But that’s okay because it signifies progressive inclusivity.

Many people are talking about the acts they have seen on Britain’s Got Talent. Audiences are realising that it’s acceptable to celebrate disability and to laugh about it! It is okay to ask questions since this educates and informs, thereby resulting in familiarity, recognition and ‘normalisation’.


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Related Blog Posts:

Jonnie Peacock and Strictly Come Dancing

Strictly Come Dancing 2018

Interview | Tabi ~ Singer-Songwriter with Muscular Dystrophy

 

My Top 10 Disabled Celebs | The Girls

The Girls:

My latest article for Disability Horizons showcases my pick of the top 10 disabled FEMALE celebrities. Because, in the wise words of Beyonce, girls run the world!

*Last year, Disability Horizons compiled their top 10 disabled celeb’s, including both men and women. To avoid repetition, I have not included any of the women from that previous article.


There is a great deal of ongoing discussion and debate around the inclusion and representation of disabled people within the media. Put simply, there is not enough diversity. Still, in 2017, the vast majority of British ‘celebrities’ are able-bodied.

However, we are seeing the emergence of more and more disabled people on our television screens and in the public eye. But, how many can you name? When contemplating this very question, I realised that most of those who immediately came to mind were male – Stephen Hawking, Warwick Davies, Alex Brooker, Adam Hills, Ade Adepitan and Jonnie Peacock, to name a few.

So what about the ladies?…


Hannah Cockroft MBE

Hannah, who has cerebral palsy, suffered two cardiac arrests within 48 hours of birth, which affected two parts of her brain. She was left with balance, mobility and fine motor impairment.

But this has most certainly not held her back. She is a gold medal-winning Paralympic wheelchair racer and 10 times world champion. In 2012 she became the first Paralympian to break a world record in the London Olympic Stadium for the 100 metres T34.

In 2014 she won the Sport Relief edition of Strictly Come Dancing with professional dancer Pasha Kovalev. That same year she launched 17 Sports Management Limited, a company representing disabled athletes.

Hannah continued her reign of success at the 2016 Paralympics in Rio where she won three gold medals.

Katie Piper

The victim of a vicious acid attack in March 2008, Katie has endured more than 250 surgical procedures to date. She suffered full-thickness burns (where both layers of the skin are destroyed) and had to wear a face mask for 23 hours every day. She also swallowed some of the sulphuric acid, damaging her throat, and was blinded in her left eye.

In 2009, the former model shared her horrific ordeal in the Channel 4 documentary Katie: My Beautiful Face. She also established the Katie Piper Charitable Foundation, which supports those with severe burns and disfigurement injuries.

In addition, she is now a successful author, television presenter, magazine columnist and philanthropist. An inspiration to many, Katie married in 2015 and is currently expecting her second child.

Cerrie Burnell

Cerrie was born with no right forearm and is severely dyslexic. Since childhood, she has always refused to wear a prosthesis or hide her disability.

An all-round entertainer, Cerrie is an accomplished actress, singer, playwright, children’s author and TV presenter. Between 2002-2008, she appeared in Holby City, Eastenders, Grange Hill, The Bill and Comedy Lab. She then transitioned to presenting, working on The One Show, The Wright Stuff and CBeebies (Jan 2009 – April 2017).

But her first appearance on children’s television was met with controversy. Some claimed that the presence of someone with a physical disability like hers could scare young viewers. In response, Cerrie spoke candidly about her disability and how it’s important that children are exposed to differences, for which she was widely applauded.

She now regularly speaks out in favour of diversity and the inclusion of disabled people in the media. In fact, she recently took part in the Channel 4 documentary Diverse NationShe’s since reached an even wider audience by presenting all the swimming events for the Channel 4 and the 2012 Paralympics.

Named by The Observer as one of the top 10 children’s presenters of all time, Cerrie has also been declared, by The Guardian, as one of Britain’s 100 most inspirational women.

A supporter of many charities including body-confidence organisation Body Gossip, Cerrie now wants to focus on writing more children’s books and acting.

Francesca Martinez

Critically-acclaimed stand-up comedian Francesca Martinez first became prominent playing Rachel Burns in Grange Hill (1994-8). Since, she has starred in BBC shows Holby City, Doctors and Extras.

But it’s not her acting that she’s most well known for, it’s her comedy. With a self-deprecating sense of humour, Francesca, who has cerebral palsy, describes herself as “wobbly”. In 2000 she became the first female to win the prestigious Daily Telegraph Open Mic Award at the Edinburgh Festival. She was also named one of the 50 funniest acts in British comedy by The Observer.

Also a campaigner and activist, Francesca has organised many charity shows and is a patron of several charities, including Evenbreak, which helps pair disabled people with inclusive employers. She’s also an outspoken opponent of government welfare reform, in 2012 launching the campaign War on Welfare (WOW), which called for an end to disability benefit cuts. She later secured the first parliamentary debate for disabled people by disabled people.

In 2013 she won the Public Affairs Achiever of the Year Award and the following year was named one of Britain’s most influential women.

Her recent sell-out comedy tour was followed by a best-selling book, both titled WHAT THE **** IS NORMAL?! She is currently working on a feature documentary of the same name.

Cherylee Houston

Screen and theatre actress Cherylee was diagnosed with Ehlers-Danlos Syndrome type III (EDS) at the age 23. She has appeared in Doctors, The Bill, Holby City, Emmerdale and Little Britain.

Her most recent role is that of Izzy in Coronation Street, which she has played since 2010, and is the soap’s first disabled character to be played by a disabled actor.

Aside from acting, Cherylee established the Manchester-based youth project TripleC, which aims to make drama accessible to all. She has spoken out about a number of political issues too, including the Conservative cuts to disability benefits and the representation of disability in the media. She also continues to raise awareness of EDS.

Anne Hegerty

Better known as The Governess in the award-winning ITV quiz show The ChaseAnne has a form of autism. In 2005, after watching a documentary about Asperger’s Syndrome and identifying with the symptoms, Anne told her doctors she believes she has the disability. It took two years for her to be officially diagnosed, during which time she lost her job as a proof-reader, due to her inability to multi-task.

Unable to pay her bills, Anne was confronted by bailiffs on New Year’s Day in 2008. She later sought advice and assistance and is to this day in receipt of Disability Living Allowance. Around the same time, her social worker encouraged her to audition for The Chase and even paid her travel costs to get there.

She is now a highly successful television personality and professional quizzer, have participated in Mastermind, Fifteen to One and Brain of Britain. Anne also talks candidly about her life with Asperger’s Syndrome and how it affects her.

Jess Thom

Jess, a comedian and public speaker, was diagnosed with the neurological condition Tourette Syndrome in her early twenties, and also uses a wheelchair. She’s most widely recognised for her memorable appearance on Russell Howard’s Good News in October 2015. The interview garnered much attention and has subsequently been viewed more than 600,000 times on Youtube – you can check it out in our article on 10 awesome disability-related videos.

In 2010 she co-founded Touretteshero, a blog that documents what it’s like living with Tourettes, featuring articles and videos. Its first production, Backstage in Biscuit Land (2014), met with critical acclaim. It has since toured nationally and internationally.

She has appeared on various television and radio programs including The Late Late Show, This Morning and Fry’s Planet Word. In 2013 she also delivered a TED talk about the misconceptions of Tourette’s and the creative potential of tics. While admitting her Tourette’s presents challenges and has been met with discrimination, she prefers to “celebrate [its] creativity and humour.”

Jess is an outspoken advocate and campaigner for disabled people’s rights. Her work often draws attention to the environmental and social barriers that prevent inclusion. An opponent of the medical model of disability, Jess insists her Tourette’s is a source of creativity, her wheelchair allows her freedom, and she is disabled not by her body but by the inaccessible environment.

Libby Clegg

Libby is a Scottish Paralympic champion sprinter, having won gold and broken records. She has a deteriorating condition Stargardt’s macular dystrophy, leaving her with only slight peripheral vision in her left eye. She is registered blind and is an ambassador for the Royal Blind Charity.

She has represented Great Britain in the T12 100m and 200m races at the 2008 Summer Paralympics, and the T11 100m and 200m in 2016 at the Paralympic Games in Rio. She is also the 2012 IPC European Champion and 2013 IPC World Champion.

As if she isn’t busy enough, Libby is also a course tutor and ambassador for Ability Training (ability-training.com), offering accredited disability specific awareness courses for sports coaches and fitness professionals.

Along with her beloved guide dog Hattie, she is helping to educate dog owners on the importance of nutrition and health. Libby raises awareness of the essential part guide dogs play in the lives of those with visual impairment.

She was recently honoured in the 2017 New Year’s honours service when she was appointed MBE for her contribution to sport.

Sarah Gordy

Award winner Sarah, who has Down’s Syndrome, is best known for her role as Lady Pamela Holland in the 2010 BBC TV series Upstairs Downstairs. She has also appeared in Holby City, Call the Midwife and Doctors, as well as various short films, radio dramas, commercials and many theatre productions.

She most recently portrayed Orlando Quine in the BBC series Strike: The Silkworm, based on the books by J.K. Rowling.

She is an ambassador for Mencap and patron of Circus Starr, a performance group that does shows for disabled children. When not acting, she volunteers at her local British Heart Foundation charity shop.

Genevieve Barr

Star of the latest Maltesers advert, Genevieve was born deaf. Having never learned sign language, she lip reads, and is, in fact, a professional lip-reader for different organisations.

She had a major role in the 2010 BBC drama The Silence, and the previous year played a deaf nurse in the Channel 4 comedy, The Amazing Dermot. Following her Bafta and International Emmy Award nominations for The Silence, she went on to act in the BBC3 drama series The Fades, and Shameless on Channel 4.

A freelance disability consultant and public speaker, Genevieve works with the charities Hear the WorldAction on Hearing Loss and AFASIC – a charity for children with speech, language and communication difficulties. She also runs courses and workshops for disabled actors.


What do you think of my choices? Who would be in your top 10?

Please leave a comment and share this blog post if you enjoyed it.

The [Un]dateables

In February 2017, I wrote a piece for Muscular Dystrophy UK about the Channel4 TV dating show, The Undateables


Last week, Channel4 aired the final episode of its reality series The Undateables, a dating show for disabled people.

For those who are unfamiliar, individuals with any disability are invited to appear on the show, now in its sixth season.

With the help of dating agencies and personal introduction services, they take part in blind dates, speed dating and match-making in the hope of finding love.

Now, I’ve seen almost every episode since it premiered in 2012, and I have to say I am a fan and supporter.

I appreciate and understand the controversy surrounding the show, particularly within the disabled community, although I personally disagree with much of the negative criticism. For this reason, as someone with a physical disability myself, I would like to offer my point of view.

Firstly, I’d like to point out that all participants have applied of their own free will. Following their appearances, all have reported a positive experience, even those who did not find love as a direct result of the show.

Tammy from series 5 says, “I put myself forward for The Undateables. At no point during filming did I feel like I was being used for entertainment. It’s an entertaining show [but] we all just want to find someone who loves us for us.”

The program has been invaluable and life changing for many, leading to long term relationships, marriage and babies. Furthermore, despite the claims of some, disabled individuals have not been coupled exclusively with other disabled people.

For example, Brent, a young man with tourettes married his able-bodied date Challis.

Steve with Crouzon syndrome married able-bodied Vicky whom he met on Twitter after the show gave him much needed confidence – he remains friends with his able-bodied date from the show.

Then there’s Carolyne from the first series, whose childhood sweetheart left her when she became paralysed following a spinal cord lesion. She later met Dean who is able-bodied. The couple had their first child together in 2014.

These are just a few of the many success stories resulting from the show.

Some critics have called into question the editing, which it can be argued is an issue with any reality TV show. However, taking into consideration the accounts offered by the participants themselves, it would seem to me that great care has been taken to ensure fair and accurate representation.

Again, I personally have no issue with the tone or editing, and have never found it to be exploitative, patronising, sensationalist or insincere. Quite the opposite in fact, I feel The Undateables realistically and positively depicts a range of disabilities, thereby raising awareness and breaking down social barriers and stigma.

James, who has Asperger’s, took part in the show last year. He told ITV’s This Morning, “It [the show] provides a lot of education on a wide range of things, not just conditions… The fact that people will tune in knowing they will learn a bit more, maybe take away the stigma, is a very positive thing. It paints a very positive picture of British audiences.”

The format itself is understandably a contentious issue: why is it not the norm for disabled people to participate in mainstream dating shows such as First Dates, (also a product of Channel4), and ITV’s Take Me Out?

Why must the disabled community be confined to a show exclusively for them? There is no definitive answer, though I would argue that it comes down to choice and demand.

As previously stated, those who partake make the choice to do so. Many have learning disabilities and are supported by family, friends and caregivers, as viewers will know. Therefore, to suggest they are being taken advantage of by producers, which some critics have, I feel implies that these people are not able to form rational decisions and make up their own minds. This is inaccurate and unjustified.

Secondly, the show is now in its sixth year (as of Feb 2017), which proves there is continuing demand from both the viewing public and applicants eager to find love, friendship and companionship.

I have found that questions and accusations such as the aforementioned are often posed, more often than not by those with disabilities. This indicates to me that, in fact, it is not predominantly the able-bodied community who have issues with the show. Yes, you may hear the occasional, ‘bless them’, ‘aw, how sweet’ and ‘good for them’ from able-bodied viewers – how very dare they indeed!

But to conclude that this is a form of ‘inspiration porn’ is in my opinion, vastly overstretching the mark. I take issue with the term ‘inspiration porn’, particularly in relation to The Undateables.

Frankly, even if viewers are in some way inspired by the determination and go-getting attitude of those they see on the show, why is that so awful?

Paralympians are equally as inspiring as Olympians. Yet there are some, particularly in the disabled community, who deem this to be ‘inspiration porn’. That is to say, people draw inspiration from disabled athletes solely due to their disability rather than their sporting achievement, as well as to feel better about their own lives. Personally, I think this is nonsense and insulting to both the able-bodied and disabled.

I cannot speak for the entire viewing public, obviously, but I have watched the show with friends and family over the years, and the feedback has always been one of support and genuine happiness for the love-seekers. Not one person I have spoken to has ever indulged in this so called ‘inspiration porn’ to, as critics say, feel better about themselves. This is the one accusation that frustrates me the most.

Okay, the title… Are Channel4 saying that we, the disabled, are undateable? Put simply, NO!

Producers have themselves stated that the title is to challenge this common misconception within society. Furthermore, as viewers will know, during the opening sequence of each episode, the prefix clearly falls from the word ‘dateables’, thus indicating the contrary.

The show itself is proof that no one is undateable – an eye opener to many viewers who may have previously thought otherwise, or have just never considered the fact that like them, we (the disabled) also need, want and desire love and intimacy.

For one reason or another, there remains a section of society that has never encountered anyone with a disability. Through no fault of their own, they consequently may be ignorant to the needs, desires and feelings of disabled people. I think The Undateables is a great way to introduce this concept to such individuals.

As James with Asperger’s says, the show is successfully removing stigma and raising awareness.

I have an older brother with complex learning disabilities, and so I’m able to draw from his perspective in addition to my own. He has expressed a keen interest to appear on The Undateablesand my family and I would be more than happy for him to do so. Neither of us feel alienated, uncomfortable, ridiculed or patronised by the show. Again, I do appreciate the criticism but for those who bother to watch it with an open mind, I believe you will find it to be well-meaning, sincere and sympathetic.

Those involved have benefitted, it has given others in similar circumstances the confidence to look for love, and it has made society realise that we all have basic human needs and desires, and the right to pursue them.

It’s easy for viewers to criticise on social media, having watched only one episode, or even one at all. But I implore you, ask the participants. Their response says it all, for me anyway. It seems to me the majority of negative critics haven’t actually seen the show and are therefore judging it superficially. It is certainly not a freak show and is not treated as such.

The dating agencies, often run by the parents or relatives of those with disabilities, aim to match clients based on common interests. Disabled people are not matched with others with similar disabilities. To assume so says more about those who think this than anyone involved with The Undateables.

So finally, I urge the harsher critics out there to actually WATCH (preferably more than once!) before judging so narrow-mindedly.

Who knows if Channel4 will commission another series of the popular show. Based on viewing figures, I’m guessing it’s more than likely they will. If so, I’ll certainly be tuning in.