Long Time Gone

It’s been a whole year since I last blogged!

Did you miss me? No, I wouldn’t either!

This wasn’t a conscious decision at all. I simply don’t believe in churning out meaningless content purely for the sake of it, so felt it best to wait.

A lot has happened over the past 12 months, both good and bad…

Of course, we’ve endured lockdown and are continuing to feel the effects of Covid, with many disabled and chronically ill people still shielding.

To protect myself and others, I received the Astra Zeneca vaccine back in March – Woop!

While this offers a lot of relief and reassurance, it is important to remain considerate of the many thousands, like me, who are high risk.

Covid isn’t going away, but neither are we! Disabled people are very much a part of society and we should not be ignored or disregarded.

To further protect myself through the harsh winter months, I’ll be getting the Flu jab at the end of September – A thoroughly beneficial prick! I urge you all to do the same, if possible.


On a personal note, we sadly lost my Nan back in January. A tough old bird ‘til the end, she made it to 94, despite smoking forty-a-day, from the age of 12-70!

I will miss her endlessly engaging, witty stories.

My Nan and I, around 30 years ago

We recently gathered as a family to scatter her ashes alongside Stourbridge canal. Despite the occasion, it was actually a really lovely day.

My 4 year-old nephew was an absolute star, “helping to push” me, in my powered wheelchair, the entire way along the bumpy canal path. That kid keeps me going – literally!

My 4 year-old nephew, wearing my sunglasses, during our family gathering

Accompanying us was the newest addition to the family, my gorgeous niece, baby Sophie, born in June. A funky-haired little ray of sunshine.

Me and my niece, baby Sophie, in June 2021

Next month, I’ll be glamming up to attend the wedding of one of my best friends. Having known each other for over 20 years, I’m excited and proud to see her walk down the aisle.

I will attempt to take photos on the big day, but make no promises. I may be distracted by cocktails! Pray there be cocktails…

Beyond that, my plan is to fully embrace the approaching crisp autumn days and cosy nights with hot chocolates, candles and cuddly blankets. Yes, I’m old. Do I care? Naaaaaah!

Oh, this year, I also discovered I really dislike figs! They have the strangest texture. Much like chewing on the sand smothered sandwiches my mum used to make for us to eat on the beach as kids. Mmm, gritty!

Product Review | Independent Living

I was recently sent a few products to try, by the lovely folk at Manage At Home and PETA [UK] LTD.

The Easi-Grip kitchen items are designed to help older people, and those like me with a disability, prepare and cook food independently.

Easi-Grip Food Preparation Board

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

This stylish food preparation board, made from sustainable Rubberwood, is a multi-purpose, top quality kitchen aid.

I was so impressed with this piece! It is really attractive and doesn’t look at all like a standard disability aid.

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

It is designed for those with weak hand function, including impaired grip, poor hand control and tremors.

Slicing a sweet potato using the multi-purpose Easi-Grip food prep board
Slicing a sweet potato using the multi-purpose Easi-Grip food prep board

Using only one hand, the Easi-Grip board allows you to grate and slice food effortlessly. The spiked area ensures food is kept in place for peeling and cutting.

Easi-Grip Food Preparation Board
Easi-Grip Food Preparation Board

Several essential items all-in-one: Stainless steel fine/coarse graters, slicers, collecting bowl, spiked area, and long-lasting wooden board.

I have muscular dystrophy ~ contractures, poor grip, and very little strength. Despite this, I found the Easi-Grip food prep board really easy to work with, and a huge asset. I no longer need to ask for any help, which is a big deal for me!

My mum, who has osteoarthritis, loves this equally as much as me! Suffering with joint pain and stiffness, she found it significantly easier to use than regular kitchen tools.

Easi-Grip Knives

Easi-Grip Knives 1. Bread knife 2. Carving knife 3. All purpose knife
Easi-Grip Knives 1. Bread knife 2. Carving knife 3. All purpose knife

This popular trio of knives has undergone a recent design revamp – the ergonomic handles are now thicker, making them easier and more comfortable to use.

The bright lime green areas indicate the “soft-feel” non-slip areas, as well as making them a bit more modern and aesthetically appealing compared to standard kitchen knives!

Demonstration of the Easi-Grip knife being used to cut a vegetable on the Easi-Grip food prep board
Demonstration of the Easi-Grip knife being used to cut a vegetable on the Easi-Grip food prep board

I would highly recommend all of these products to anyone, regardless of (dis)ability. They are top quality items and I am so thankful to Manage At Home and PETA [UK] LTD for sending them to me. I love to cook, and these kitchen aids have made life a little easier for me.

*Disclaimer*

This post is in collaboration with Manage At Home and PETA [UK] LTD. The products were gifted to me in exchange for an honest review. Opinions expressed are entirely my own.


Many thanks to Manage At Home and PETA [UK] LTD

Related Blog Posts:

Product Review | Bellavita Bath Lift from Manage At Home

Memory Lane | Child of the 90s

Though I still look about twelve (woo! 🙄), I’m actually now the grand old age of 31; A true child of the 90s.

A friend and I were recently gabbling away and reminiscing about things from our childhood.

Some were great! And others were…not so great.

Do you remember any of these..?

Babyliss Hair Straighteners/Crimpers

Image Description: Babyliss hair straighteners/crimpers from the late 1990s
Image Description: Babyliss hair straighteners/crimpers from the late 1990s

Many years before obscenely priced GHDs became the go-to hair straightener of choice, we had this bad boy!

A multi-purpose hair straightener/crimper, this clumpy contraption took about an hour to reach a lukewarm temperature. We then had to clamp each section for…oh, flippin’ ages!

Quite why we wanted to crimp our hair, I don’t know. But at the time, we thought we looked ace! On reflection…not so much.

Tammy Girl

Image Description: Tammy Girl shop front
Image Description: Tammy Girl shop front
Image Description: Classic Tammy Girl T-shirt
Image Description: Classic Tammy Girl T-shirt

I kid you not; I owned this very T-shirt and many like it, courtesy of the (not at all) classy pre-teen clothing store, Tammy Girl. Oh yeeaah!

Sadly, Tammy is no longer. I can’t think why.

Despite not wearing cool and funky clothes like this now I’m in my thirties, I remain a ‘babe with attitude’. Well, sorta!

Impulse O2 Body Spray

Image Description: Impulse O2 shower gel (left) and O2 body spray (right)
Image Description: Impulse O2 shower gel (left) and O2 body spray (right)

Bloody loved this stuff!! How I miss the lingering, intense scent of ethanol and limes.

Whyyyy it was discontinued, I’ll never know.

BRING IT BACK, IMPULSE!!

We don’t all want to smell of white musk (eau de old lady)!

Girl Talk Magazine

Image Description: Front cover of an issue of Girl Talk magazine from the 1990s
Image Description: Front cover of an issue of Girl Talk magazine from the 1990s

A highly educational read for pre-teen Carrie!

Every issue of Girl Talk came with freebies, like miniature furry photo frames (we all love those, right?), and posters of goats and donkeys.

I do like to lay in bed at night and gaze at a donkey poster, don’t you?

Animal Ark Books

Image Description: A collection of books from the Animal Ark series by Lucy Daniels
Image Description: A collection of books from the Animal Ark series by Lucy Daniels

Now, I had forgotten about these books (sacrilege!), until my mate asked, “did you read those rubbish animal stories that were all the same?”

Yes. Yes, I did.

No disrespect to author Lucy Daniels, but I don’t think she’s ever gonna take down J. K. Rowling with these riveting tales of piglets and pussies.

Blockbuster Video Store

Image Description: Blockbuster video store shop front. "Closing Down" posters shown in the windows
Image Description: Blockbuster video store shop front. “Closing Down” posters shown in the windows

Who remembers VHS? Anyone..? I genuinely miss video tapes and cassettes. You could chuck them on the floor and they’d still be good to go.

What I miss even more is going to Blockbuster on a Friday, after school, to rent a video for the weekend.

Simple pleasures. Happy days.

Woolworths

Image Description: A woman selecting sweets from a Pic'n'Mix display at Woolworths
Image Description: A woman selecting sweets from a Pic’n’Mix display at Woolworths

Need I say anything for this one?!

RIP Woolworths. What has the world come to?!

Kids today are truly missing out.

New Year, More Me!

We’re now in the midst of January, and many are following a “new year, new me” health and fitness regime.

Most of us over-indulge at Christmas. Too much rich food and too much booze.

Everywhere you look, it seems people are trying to lose weight and tone-up. Fair play to them! Do what makes you feel good.

But just to break the trend, here I am trying to put on weight!

Okay, so…I’m teeny tiny. Pixie sized! My weight has always been fairly consistent and never really fluctuated.

Of course, my condition influences this. Muscle weighs vastly more than fat, right? Well, I have very little muscle mass. And so my BMI is always going to be much lower than the average.

I won’t lie, I’ve always consciously monitored my weight and my calorie intake. Not due to vanity, but practicality.

I am non-ambulant and therefore cannot transfer independently. I get thrown around a lot! From chair to chair, chair to bed etc. If I were significantly heavier, life would be much more difficult!

People who struggle to lose weight often ask me how I stay so tiny, considering I’m unable to exercise. Well…

~ Growing up with older brothers helps! I’ve always scraped food off my plate onto theirs. And they were always happy to finish off any food I left.

~ Study food labels and count calories.

~ Self limitation. I’ve almost trained myself to say no when someone offers me chocolate or a biscuit. Bad, I know.

~ It might sound silly but, over time your stomach does shrink and your body adapts. You learn to function on fewer calories.

*Now, to make it absolutely clear, I am in no way dictating, advising or advocating such bad habits! I am very much aware that this is unhealthy behaviour.*

So, why do I now want to put on weight?

When I’m ill, I eat less. When I’m really stressed, I stop eating. In these instances, I am NOT consciously monitoring my weight.

Over the past 2 months, I have unintentionally lost weight. This will no doubt affect my overall health and wellbeing, reducing energy levels and leaving me vulnerable to infection and illness.

Believe it or not, increasing calorie intake is far more challenging (for me) than you might imagine. It’s difficult to break the habit of a lifetime!

Before, I would go literally all day without eating a thing. No breakfast, no lunch. I would then pick at my dinner and that would be it.

I am now constantly reminding and forcing myself to consume food and drink, little and often, throughout the day.

If I can put on half a stone, I’ll be happy. I’ll still be skinny, but I’ll be healthier. That can only be a good thing!

The Winter Edit: Part 2

5 Tips to Stay Well through Winter

The dark nights are drawing in and the weather is turning increasingly colder. The harshness of winter fills many disabled people, myself included, with dread.

How can we best prepare ourselves for winter?

We are 80% more likely to catch a cold during winter.

Bearing that in mind, here are my top tips to stay well and defend yourself against those nasty winter viruses.

Click here for Part 1 ~ Top Tips to Keep Warm through Winter!


1. Stock up on supplies:
Medication –


• It’s always advisable to keep a stock of essential supplies in your home. Several factors, including adverse weather, can prevent you from getting hold of medicines at short notice.
• All my medications are on repeat prescription so that I don’t have the bother of getting hold of a GP every time I need something.
• As someone with Ullrich congenital muscular dystrophy, a common cold for me can develop scarily quickly, and so I ensure there’s always a reserve of antibiotics at home, should I need them.
• It’s important to go and get your Flu jab annually and, where relevant, the pneumonia vaccination. Don’t leave it too late to protect yourself from influenza – it takes two weeks from the time you’re injected for your body to build up an immunity.

Contacts –

• It’s good practice to have a list of contacts, in case of an emergency. Include medical professionals (e.g. doctors, consultants, physiotherapists and hospital ward/department direct lines) so that you or your next of kin can contact, should you become ill. Keep your list somewhere easy to find, such as on the fridge, and make copies!

2. Nutrition:

• I choose to take supplements including a daily multivitamin and probiotics, in order to boost my immunity. Supplements come in various forms: tablet, capsule, liquid and powder. If you struggle to swallow pills, there’s always another option out there for you.
• I’m not a fan of water, so I drink a lot of herbal teas, such as lemon and ginger, to keep me hydrated and flush out toxins. Both ingredients are naturally antibacterial while ginger also helps ease migraines, inflammation and nausea (the latter being a common side effect of antibiotics). Add some honey for sweetness and to soothe a sore throat.

• I find smoothies and soups are an easy way to get your recommended allowance of vitamins and minerals. It’s really important to eat healthily to aid your bodies defence against all those coughs and colds circulating throughout the winter months. Remember: you are what you eat!

Top Foods: lemon, ginger, garlic, onion, kale, cinnamon, turmeric, honey, apple cider vinegar, grapes, natural yoghurt and chicken soup.

3. Cleanliness:

• I keep a little bottle of antibacterial hand gel in my bag (you can buy them really cheaply from most shops nowadays). I use it when out and about or using public transport. It’s a simple way to prevent the spread of germs from surfaces and person to person.
• It’s stating the obvious but wash hands with soapy water and maintain clean surfaces within the home. It’s often difficult to prevent all members of a household becoming ill when one gets sick. But simple precautions such as this could make all the difference.
• Grab yourself a few packets of antibacterial wipes and remember to clean phones, remote controls, computer keyboards and door handles regularly. You’d be amazed how much bacteria harbours there.
• Be considerate and try to cough and sneeze into a tissue rather than the air. It’s a good idea to keep plenty of tissues in stock. Please don’t do what my Dad does and carry a snotty cotton handkerchief around with you all day – bleurgh!
• Replace your toothbrush after you have fully recovered from an illness.

4. Physiotherapy:

• It’s beneficial to stay as active as physically possible, particularly throughout winter as immobility makes us more vulnerable to infection.
I am completely non-ambulant and so this is a major issue for me. Immobility results in muscle decline and poor circulation, which in itself leads to further complications.
• Although I cannot exercise in a conventional fashion, I basically wriggle and move about as much as I can. For example, I flex my feet & wiggle my toes, lean back and forth and side to side in my chair. Don’t be afraid to put some music on, loosen up and just MOVE however you can, for as long as you can.
• If you are able, go swimming as this is the best exercise for those with physical disabilities.
• Remember to pay attention to your lungs! Deep breathing exercises are an essential daily requirement for me. Following the Active Cycle of Breathing Techniques (ACBT) helps to keep me as strong as I can be.

5. Avoid Germs:

• I am particularly susceptible to respiratory viruses. If I go anywhere near someone with a cold, 9/10 I will catch it. For me, a common cold can quickly progress into a much more serious condition, I do my best to limit exposure to infected people.
• I avoid overcrowded spaces and public transport when I’m feeling run-down, whilst taking and shortly after a course of antibiotics as this is when my defences are the lowest.
• At times when coughs/colds are prevalent within the local community, I try to stay away from enclosed public places e.g. trains, buses, cinema, supermarket/stores, pubs, clubs etc.
• If you must go out, remain in the fresh, open air (but wrap up warm).
Wear a scarf when out and about. When necessary, I can use it almost like a mask, pulling it up over my face. This prevents me from inhaling and contracting airborne viruses.
• Why not add a few drops of Olbas Oil (eucalyptus) to your scarf. That way, when you do need to pull it up over your nose and mouth, you can breathe in the fresh scent and it won’t feel stuffy.


I really hope this was helpful! Please SHARE this blog post so that others may benefit.

I’d love to hear from you – what do you do to stay well throughout winter?

The Winter Edit: Part 1

5 Tips to Keep Warm this Winter

Winter is well and truly here and so too is the frosty weather. British winters can be long, dark and unforgiving.

To help you make the most of the season ahead, I bring you Part 1 of my Winter Edit – advice, tips and tricks to ward off the chill.


1. Chilblains:

Because I am unable to weight-bear, I suffer from poor circulation, making my feet permanently cold. I have what can only be described as corpse feet – purple and puffy!

I have tried all sorts of remedies over the years to treat recurrent chilblains, but I’ve found the best to be Gehwol Fusskraft Red cream (available on Amazon).

I slather it on generously before putting on a pair of thick woolly socks, and find my feet are subtly but noticeably warmed and chilblains are kept at bay.

  • A good alternative to the Gehwol Fusskraft Red cream is the Pink Peppermint foot lotion by Lush, which works similarly to stimulate circulation. If going out on a cold day I’ll sometimes rub this into my hands to fend off frosty fingers.
  • In terms of footwear, you can’t beat (in my humble opinion) a pair of shearling lined boots *ahem, Ugg dupes*. They may not be the height of sophistication, but they do the job and they’re ridiculously comfortable. I can imagine all the guys out there are thinking this is one for the ladies, but there is a good selection of shearling lined winter boots out there for men too.

2. Layering:

We all know it’s best to layer clothing when cold. However, this is not so easy to do when you’re a wheelchair-user.

Getting dressed is a daily struggle for me, so having to battle with more than one top fills me with dread.

So, my advice put simply; if you can layer, do. If like me you can’t, keep reading…

I live in leggings as they’re stretchy and comfortable. You can buy leggings everywhere and anywhere these days but I favour Marks and Spencer heatgen thermals.

There are socks, tights, vests, long sleeved tops and of course the leggings I love. Again if you’re able to, I recommend wearing these items under your usual attire for added insulation. But they’re ideal to wear alone too. M&S also feature a men’s thermal underwear range.

A great alternative to M&S is the Uniqlo Heattech range for men, women and children. This extensive selection is it is competitively priced, practical and fashionable. Definitely check this one out!

uniqlo

  • I swear by scarves. They’re so easy to throw around to protect against the winter chill. They come in so many fabrics, sizes, colours and styles. Invest in a thick woollen scarf big enough to wrap around your body like a poncho or use as a blanket over your legs. I sometimes do this if I’m home alone as I can’t manage sleeves myself.
  • Wear a woollen hat when going out in cold weather as heat escapes from our heads.
  • Gloves aren’t just for outdoors. If you suffer from cold hands, try wearing a fingerless pair when indoors which allow you the freedom to continue with your daily tasks. If it’s a particularly frosty day and I need to go out, I will layer woolly gloves over a fingerless pair. You could also purchase some USB heated gloves online.

  • Throughout the coldest months, ensure you use several bed sheets as this traps heat in far better than having one thick blanket. It’s also much easier to turn and reposition yourself with a few thinner cotton sheets over you than one heavy blanket. *I’ve mentioned it before but for those of you who struggle with turning in bed, I highly recommend investing in a satin fitted sheet.

3. Fabric:

When trying to keep warm it’s worth considering where you are and what you’re doing as this will determine which fabrics to opt for.

  • Natural fibres such as wool, cotton and silk are more insulating since they trap heat. So lightweight silky pyjamas will not only keep you snug at night, they will also help you manoeuvre more easily. Cotton is hypoallergenic, breathable and good for layering but not advisable in wet weather as it is also highly absorbent. Wool too absorbs moisture though due to its structure, water cannot enter the interior fibre. Therefore, even when soaking wet the air pockets inside the woollen fibres prevent you from losing heat. 100% wool is best as blends are less insulating.
  • The synthetic fabric polyester is good when out on a windy day. It’s durable, lightweight and can be made to any thickness. A polyester coat or jacket is a must. And why not snuggle up in bed with a polyester fleece mattress topper, available from Amazon.

4. Food:

  • Swap your morning cereal for warming porridge oats. Add a little cinnamon as it stimulates circulation thereby raising body temperature. Cinnamon spice is also full of antioxidants and anti-inflammatory properties which will protect you from winter viruses.

  • Opt for soup over sandwiches. Include iron rich foods, garlic, onions, spices and orange vegetables such as carrots, sweet potato and squash.
  • Whole grains, nuts and nut butters are great insulating snacks.
  • The dark days and cold weather can make us lethargic. Many of us lack the energy to cook after a busy day. So to prepare for the week ahead, make yourself plenty of warming hearty meals like stews, broths, casserole and chilli, then freeze. When you then come home in the evening, all you need do is reheat and enjoy. You’ll be warmed through in no time.
  • Hot drinks are a winter essential. I drink a lot of herbal teas, especially lemon and ginger as these ingredients are great for flushing out the system and warding off coughs and colds. When on a long journey take a flask of hot coffee or tea with you to stay warm and hydrated.

5. Home Heating:

It’s important to maintain a warm and consistent temperature in your home throughout the winter.

Exposing yourself to extreme and varied temperatures can leave you vulnerable to ill health and infection. Government guidelines advise heating our living rooms to 21C (70F).

Most of us now have central heating which can even be controlled from our mobile phones.

My family home is primarily heated by a wood burner which warms the whole house.

However, I cannot prepare and light the fire myself due to my disability. I therefore store a fan heater in my bedroom which is simply operated by the flick of a switch. There are many different electric heaters now on the market. Here’s a budget option and a higher end option for you.

You could also pre-heat your bed with an electric blanket or a hot water bottle so that it’s nice and toasty for you to get into at night.

Honourable Mentions:

  • Invest in a high tog duvet for frost nights.
  • For a quick fix, blast yourself with the hairdryer for instant heat
  • Heating pads and microwaveable heat pack
  • Reusable hand gel warmers (I have these)
  • Microwaveable slippers/USB foot warmer
  • Check out the complete care shop for a variety of warming aids
  • Enjoy a cosy night in front of the fire with a milky hot chocolate – my favourite is Galaxy or Aero – and a big bowl of homemade cinnamon popcorn!

I hope this was helpful! If so, please SHARE 

Winter Edit: Part 2 ~ Tips to Stay Well through Winter