Darker Days & Silver Linings

Happy Halloween, folks!

As much as I love the spooky season, I’ll be glad to see the end of October this year.

I fell ill on the first Saturday of the month, and I’m still not fully recovered.

It’s now over 4 weeks since I left the house, or saw anyone other than immediate family and carers.

For me, this isn’t unusual. Prolonged periods of chronic illness and isolation are, unfortunately, all too familiar.

A simple cold can very quickly progress into pneumonia – a frequent occurrence over the years, resulting in lengthy hospital admissions.

The vast majority of people don’t understand how I can be so ill for so long. Why would they? It’s hard to comprehend something you’ve no knowledge or experience of.

Muscular Dystrophy

This is why my primary aim is to inform and raise awareness of the rare condition, Ullrich congenital muscular dystrophy.

Most so-called medical professionals are totally clueless. It’s therefore no surprise that I’m met with blank faces when telling people about my disability.

Muscular Dystrophy? What’s that?

Explaining the ins and outs of my condition and how it affects me, can be exhausting. But it’s also important.

I’m almost 34, and, for me, the most debilitating and frustrating part of my disability is the daily fatigue and impact on my respiratory health.

As the saying goes, ‘health is wealth’.

Living with Chronic Illness

It can be incredibly difficult to remain optimistic when living with a progressive condition and chronic illness.

This past month has been tough!

Following three decades of cancelled plans, missed opportunities, and life on pause, here are a few things I’ve learnt:

1. Never make decisions when at your lowest.

2. Try not to withdraw or push people away. Knowing I’m unable to commit to plans, it can be easier to distance myself from people to avoid letting them down.

3. Reach out to loved ones.

4. Find joy in simple things.

5. Don’t waste valuable time, energy and effort on that which doesn’t serve you.

6. Set goals and make plans!

7. Focus on what and who matters most to you.

Halloween… 🎃🕸🍁👻🔥

With less than a fortnight until All Hallows’ Eve, here I bring you a few book and movie suggestions to get you in the spirit (you see what I did there – spirit!? Oh, never mind…)

*To check out my top picks from last year, click here.*

Film recommendation: 

IT: Chapter One (2017) Dir. Andy Muschietti

IT: Chapter One is definitely my movie choice this Halloween. If you haven’t already seen it, why not check out a late night screening at your local cinema?

I went to see it with my two older brothers and I’ll be honest, I wasn’t expecting much from this remake based on the novel by Stephen King. But, in my opinion, it’s well made and the casting is spot on. There’s just the right mix of thrills, fright, gore and even humour.

I’m not a fan of horror films in general, simply because I’ve never found one that has scared me. I must say though, this one impressed me!


Family film: 

Hotel Transylvania (2012) Dir. Genndy Tartakovsky

This animated fantasy film, along with it’s sequel, will entertain younger kids and grown-ups alike. Fast-paced and fun-filled, there’s plenty to keep a younger audience engaged, while quirky gags and more mature references will amuse adults.

Hotel Transylvania is essentially about family and the universal theme of a parent reluctantly letting go of their grown child.

Count Dracula, voiced by Adam Sandler, is throwing a 118th birthday party at his hotel, for daughter Mavis. The hotel is a place where monsters can gather and feel safe from the threat of humans, whom they fear. But, trouble starts when 21 year-old Jonathan (Andy Samberg) loses his way and finds himself at what he thinks is an extravagant fancy-dress party. Jonathan, a human, soon locks eyes with vampire Mavis – the only child of Count Dracula – and the pair fall in love.

The story is predictable, but it’s aimed at children and so this is to be expected. However, if you’re looking for a film to occupy the whole family this Halloween, I would recommend this one!


Recommended reading:

Dracula by Bram Stoker

Following on from Hotel Transylvania, it seems appropriate that I select Dracula, written in 1897, as my top pick – though obviously this one is not for the kids!

A gothic horror, the novel is written in epistolary format (a series of documents) and tells the story of Dracula who travels from Transylvania to England in order to feast on fresh blood and spread the undead curse.

He boards a Russian ship, the Demeter, which reaches the northeast shores of Whitby, (where I recently visited).

While there, Dracula becomes obsessed with a young woman named Lucy and begins to stalk her. Lucy soon begins to waste away and is diagnosed with acute blood-loss, though Dr Abraham Van Helsing cannot understand how or why. Eventually Lucy dies, but not before Van Helsing identifies the puncture wounds on her neck. Failing to prevent her from converting into a vampire, he along with three other men, kills her by staking her heart and beheading her.

A team of vampire hunters, led by Van Helsing, then pursure Dracula himself, which leads them to London. In retaliation, Dracula places a curse on Mina, the wife of one of his pursuers.

Through hypnotising Mina, the group are able to track Dracula, who has returned to his castle in Transylvania…

The Signalman by Charles Dickens

If you’re looking for a quick read, this classic short story is the perfect choice. A haunting and spooky tale, it will stay with you long after reaching the shocking conclusion.

Written in 1866, it tells the tale of a railway signalman, troubled by phantom appearances and supernatural goings-on. Over two nights, the signalman meets with the narrator, whom he invites into his gloomy cabin to share his worries and premonitions.

At first reluctant to tell his story, the signalman soon confides that these ghostly visions precede tragic and fatal events on the line. The first being a collision of two trains in the dark tunnel involving many casualties. The second incident saw a young woman lose her life on a passing train.

Convinced these premonitions are all a figment of his imagination, the narrator urges the signalman to see a doctor. However, it may already be too late…


I hope you all enjoy Halloween, whatever you get up to!

If you enjoyed this post, please let me know in the comments below, and don’t forget to share ~ Thank you!

Halloween is on the way…

I love Halloween, always have always will. I can’t explain exactly why I love it so much, after all nothing particularly exciting happens. I guess it just appeals to my inner child. Either that or it’s my curious fascination with the macabre! I’ve never attended a themed party nor have I been trick or treating as a kid. My parents are quite conservative and so wouldn’t allow myself or my brothers to go “bothering people for treats”.

As an adult I’m more of a ‘cosy night in’ type anyway, so my ideal Hallows’ eve involves cosying up in front of a wood burning fire with a hot chocolate, a scary film and the lights out. Wild eh!

Black dog in place of a black cat?

I must admit I really don’t scare easily. I find most horror films predictable and silly rather than spooky. I can honestly say I’ve never watched a film that has genuinely frightened me. However, when channel flicking one night, by chance I caught one that made a memorable impression…

Film recommendation:

Saw (2004) Dir. James Wan

This is the first film by Aussie duo James Wan and writer/actor Leigh Whannell. On a minimal budget they made this really clever and creative film that has spawned a whole franchise.

The basic plot sees Oncologist Lawrence (Cary Elwes) and photographer Adam (Whannell) wake up in a filthy, dilapidated bathroom, both chained to pipes at opposite sides of the room. Between them lies the corpse of a man who holds in his hands a revolver and a cassette player. The two men soon realise that they’re only way of escape is to play along with the game set by the sadistic ‘Jigsaw’ killer.

Personally I wouldn’t bother with any of the sequels; as you would imagine they’re rather unimaginative and repetitive. However, the original Saw has a simple but great premise and a shocking concluding twist that will leave you gripped to your seat.

*Tip* if you have the patience to sit through a whole movie commentary, I thoroughly recommend you check this one out. An informative and animated discussion including impressions and plenty of laughs; you will see this psychological horror film from a whole new perspective.

Family Film:

Hocus Pocus (1993) Dir. Kenny Ortega

If you’re looking for a fun family film, you can’t beat this classic starring Bette Midler. Although it’s been over 20 years since it was made, it hasn’t dated and is still just as enjoyable as it was on its initial release. Midler, Kathy Najimy (Sister Act) and Sex and the City’s Sarah Jessica Parker, as the three witches are the standout attraction. Jam-packed with music, magic, adventure and plenty of laughs; both young and old will revel in the delights of this Disney experience.

Pumpkins:

If nothing else, you’ve got to carve a pumpkin for Halloween! It’s something simple you can do, especially with children, to partake in the seasonal celebrations. It’s fun, messy, creative and cost effective. To me it’s the first thing I associate with Halloween and as such my family and I carve one every year. We always intend put the removed flesh to good use, though we rarely do. My brother and I did make pumpkin soup a couple of years back which seemed to go down well!

Other pumpkin recipes you might want to consider include, of course, traditional pumpkin pie, as well as muffins, smoothies and even ice cream. A member of the squash family, you can also dice it into chunks and roast or bake it. You could use it in curry, casserole and risotto or carve out smaller pumpkins and stuff them with whatever you fancy; a slight variation on stuffed bell peppers.

And don’t forget the seeds! Pumpkin seeds are highly nutritious, containing iron, heart healthy magnesium, copper, manganese, protein, antioxidants and zinc for immune support. Naturally high in fibre and omega-3 oils, they’re hugely beneficial and easy to incorporate into your diet. Roast for 20 minutes for a quick and easy snack on the go, sprinkle over salads, porridge and muesli. You could add a few to your cakes, flapjacks and stews for extra crunch, make some pumpkin seed loaf, or you could simply blend until smooth for your very own pumpkin seed butter.

So when you’re eagerly carving away, please don’t cast aside the gift that’s inside. Proven to help the heart, liver and the immune system, these little seeds also act as an anti-inflammatory, a sedative for a good night’s sleep, and an insulin regulator. Essential for men and women, they have been found to promote prostate health and suppress menopausal symptoms. See, Halloween can actually be good for you!

I’ve not yet bought this years pumpkin so once it’s carved and ready for display, I’ll post some pictures for you. Every year I attempt a different design but for the moment I’m undecided which way to go. I warn you in advance though, limit your expectations (I can sense the excitement already). As previously mentioned, I have a muscle wasting condition and so must work within my means. I’ll not be producing anything too adventurous.

I’d love to hear all about your Halloween plans. Do you enjoy it as much as me or are you the type to shut the curtains and ignore the trick or treaters tapping at your door?