One of Those Days…

Nosey Bints, Parking Tickets and Frustrating Phone Calls

They say bad luck comes in threes…or is it multiples of three? 

I’m generally fairly tolerant with day-to-day annoyances and ignorant people.

As a wheelchair-user, I’m used to complete strangers who feel entitled to stare or approach me for interrogation. They tend to be so ridiculous I choose to simply laugh it off.

Don’t sweat the small stuff, right.

But there are also times when my patience is wearing thin. Some days, I’m just not in the mood!

Today is one of those days.


I attended a routine hospital appointment and parked my Motability WAV in a disabled bay, with my blue badge clearly displayed, as usual.

As I reversed out of the WAV, I heard a woman stood directly behind me shouting, “I’m just having a nosey inside!”

*Cue eye-roll* Oh, feck off, lady!

I then waited in a small room crammed full of virally infested patients for well over an hour, only to be told the nurse I was due to see went home sick hours before. Which begs the question – why not inform me of this on arrival?!

I waited a further half an hour to be seen by another nurse. At least it wasn’t a wasted journey, I guess.

Having returned to my car, I was ever-so-slightly pissed off to find a parking ticket!

As soon as I got home, I logged-on to check out the meaning of this fuckery. As I suspected – no reason for issue, no explanation and no photo evidence.

Needless to say, I wrote a strongly worded appeal. Under no circumstances will I be paying this unjustified “parking charge”. No, just no!

Shortly after, I received a phone call from the CHC (Continuing Healthcare) department who claimed to have made a personal care payment back in the summer. They didn’t.

I won’t go into details (it’s a long story!) But my battle with Continuing Healthcare has been a lengthy and stressful one, with absolutely no benefit.

Okay, putting things into perspective, this isn’t the end of the world! I’m now sat watching cartoons with my beaut of a nephew. So it aint all bad!

As I say, some days you’re just not in the mood.

Tomorrow will be kinder…we hope!

Anyone got any rum??

Disabled Life | Daily Frustrations

As some of you may know, I have the rare condition Ullrich congenital muscular dystrophy, and consequently, I am a full-time wheelchair-user.

I have just turned 31 (sooo old!) and, in order to live my life, I require support from personal carers.

Today, I (well, actually my mother) received the following letter…

Now, don’t you just love it when so-called “professionals” invite themselves to your home to drink your tea and eat your biscuits at a time and date to suit them?

How about…NO!

It seems the assumption is that disabled folk just sit at home all day, idly twiddling their thumbs ~ Nah, mate.

Not only that, they failed to inform me and instead wrote to my mother! WTF?!

I know I’m child-sized but I am in fact a fully-functioning adult who manages all aspects of her own care needs.

~ My disability!
~ My carers!
~ My business!
~ My life!!

I wouldn’t mind so much, only I’ve spent months jumping through hoops (not literally, obviously) and answering the most inane questions in order to qualify for NHS CHC (a continuing healthcare package – to pay personal care assistants).

*FYI ~ I am currently in receipt of Direct Payments, enabling me to employ and pay my own carers* 

As yet, I haven’t received a penny via CHC, though I did get a call to say an initial payment was made during the summer. Nope, sorry, no it has not!

(Little tip for you ~ when it comes to NHS/council funded care, QUESTION EVERYTHING!)

Rant over 😊

Have a lovely, lovely day 👍🏻