This week, the UK government issued new measures to suppress the spread of Covid-19. From Monday 14th September, social gatherings will be limited to 6 people.
In all honesty, I can’t say I’m surprised at these restrictions. From my perspective, as a physically disabled shielder, it seemed inevitable.
Our government has actively encouraged people to return to work, to school, the High Street, the salon, the gym, to pubs and restaurants.
Of course, we all want a return to some sort of normality. And while it is essential we sustain our economy through supporting businesses and minimising unemployment, it would appear BoJo favours wealth over health.
Those at greater risk have been largely neglected; the elderly, disabled and those with underlying health issues.
Many, like myself, have been shielding since March. We have been isolated in our homes, watching the world go by from behind closed windows.
Some have endured months without medical support. Personal carers, though essential, pose a risk to the most vulnerable. And others are forced to leave work, since there is little to no support for disabled employees.
I am very fortunate to have been able to continue accessing my routine hospital appointments throughout lockdown.
Despite initial anxiety and fears from friends, I felt safe and protected during every one of my 6 hospital visits and 2 GP appointments since March – all thanks to our invaluable NHS.
However, after waiting almost a year for a much-needed respiratory referral, I fear my upcoming appointment may now be cancelled, due to the latest guidelines.
My discussions with various medical professionals over the past few months reveal concerns for a second lockdown around October.
With Flu season approaching, this warning poses an even greater strain and impact on the elderly, disabled and NHS.
I’ve read many trivial complaints on social media about the Coronaviruslockdown.
From park, pub and salon closures, postponed gigs and concerts, to cancelled botox, filler and wax appointments. Some are even moaning because they can’t race around and show off in their flashy cars. What a shame!
I appreciate we all have our own interests, outlets, coping mechanisms and methods of self-care. We all want to look and feel our best, and we all need somewhere to escape to.
But please, let’s try and keep things in perspective.
The current situation isn’t permanent. Of course, it’s tedious, stressful and frustrating, and will impact some considerably more than others. But it will pass and “normal” life will resume.
People on the frontline are literally risking their lives to help others – complete strangers. They are physically and mentally exhausted, yet keep going.
Carers continue to support the most vulnerable in society, despite the risk.
Key workers carry on working to ensure society functions and people are provided for.
On the upside, lockdown provides an opportunity for families to unite, spend quality time together and talk more.
But for others – men, women and children – being stuck in close proximity, unable to escape, can be a living hell.
The National Domestic Abuse helpline has seen a 25% increase in calls and online requests for help since lockdown began!
We all have problems and we are all entitled to feel and express what we need to in order to get through these trying times. Your experiences and frustrations are valid.
But please, keep in mind the medics, carers, key workers, the elderly, disabled, those living with domestic abusers and those separated from their loved ones.
Try to appreciate what you do have – for example, your health, home, and hope for the future.
When you’re feeling low, maybe write a list of all the positive things in your life and focus on that rather than the things you are currently missing out on.
Though we all must now adapt and change our way of life somewhat, it’s important to remember this is only temporary. Things will improve.
I’ve heard people complain about the restrictions; mostly young, fit, able-bodied people. Yes, it’s a pain in the fat ass! But it isn’t forever.
Also, please be aware that many disabled and chronically ill people are repeatedly forced into prolonged periods of self-isolation throughout their lives. Plans are often cancelled last minute due to poor health. This isn’t new to them.
So, before you complain because you can’t go out partying with your mates, or to the pub, please consider those for whom limitation and isolation is a way of life.
Show your thanks and appreciation for the NHS and those working in health and social care.
Be mindful of the most vulnerable in society, and help out if you’re able to.
Please don’t panic buy or stock pile. This isn’t the apocalypse, people!
Wealden Rehab Equipment Specialists share the benefits
of having an Occupational Therapist in the team
Care equipment specialist Wealden Rehab works alongside in-house and external qualified occupational therapists (OTs).
Our in-house OT, Gayle Cardwell has 20 years experience, benefiting the team with clinical skills that can
be transferred into private practice. The collaboration between care equipment
providers and clinical experts results in a truly personal service.
Gayle offers her knowledge and understanding of both mental and physical health and wellbeing to the product advisors at Wealden Rehab, emphasising the importance of a personal approach being necessary to achieve the best
Assessing each client holistically encompasses the environmental considerations, which improve solutions for installation of ceiling hoists and
more detailed clinical considerations for seating.
Upon prescribing a piece of equipment, the occupational therapist must clearly show their clinical consideration. Gayle has devised and shared documents to encourage clinical reasoning when prescribing Wealden Rehab’s most popular
products. The documents are aimed at prescribing OT’s to consider the individual, environment, the task and to help justify the most appropriate outcome for the end user.
Gayle has provided a rigorous training program for all of Wealden Rehab’s product advisors, through individual and group training sessions. Her ongoing program is designed to enhance the assessments and the training they offer to their customers, which brings extra value.
Wealden Rehab recognise the
significance of having an OT in the team and a clinical approach in devising and delivering training for OT customers when prescribing Wealden Rehab products. We have observed increased confidence, greater understanding from OT’s in the
set-up and recommendation of our products, resulting in improving the end users
In the future, Wealden Rehab will be adding to the range
of products and, with specialist input, Gayle will be able to critique and share her clinical knowledge regarding new products. This will surely have an impact on the quality of life of many users, which is, Gayle says, ‘At the heart of
everything we do.’
He attended university, completed a placement year, works full-time, started his own business, and is now on the Great Britain Air Rifle Talent and Development Squad. Josh is able to drive a wheelchair accessible vehicle (WAV) and has lived independently since leaving his parental home at 18.
1. University ~ Can you tell us about the process of putting a care package in place and living independently as a disabled student?
During my last year of college, I expressed an interest in going to university. After research with my social worker and factoring my needs and desires, we identified appropriate universities that fit my criteria. I then had to decide on a live-in carer or a care agency. I opted for the agency route in order to be as independent as possible.
Once accepted by the university, I sorted accommodation and started looking for care agencies. My social worker provided me with a list of care agencies registered with the CQC, but it was down to me to make arrangements. The first care agency turned out to be unpleasant! So, after 4 months, I switched to another agency who I remained with for the duration of my university experience.
2. How was your overall university experience?
My overall uni experience was, let’s say, fruitful! From falling asleep in my wheelchair in front of the mirror to having university staff put me to bed within the first week because I was so drunk. It was clear that I was going to make the most of my 3 years at uni!
I got involved with numerous societies and activities to keep myself active and included with the student culture. I had a fantastic time and never experienced any discrimination or abuse. The staff made me feel at ease, allowed me to be as independent as possible, and provided access to necessary resources.
I graduated with a first class honours in IT Management and Business and, 4 years after graduating, I was invited back to receive an Honorary Masters in Technology.
3. You carried out an internship with Hewlett Packard during your studies, and then worked as a cyber security manager. What, if any, challenges did you encounter in finding employment and how does your disability affect your working life?
The general employment process with assessment days, face-to-face interviews and telephones interviews were fairly seamless. Most employers are extremely accommodating if you give them notice and make them aware of your access needs.
I do remember one assessment day with a popular car manufacturer where the activities impacted my ability to take part due to my physical requirements. This may have affected their decision to not employ me, even though I was just as capable, if not more so, than the other candidates. But apart from that, I have not had any issues finding employment.
Obviously, my disability limits me physically. However, as I work in technology it does not affect my ability to do my job. Yes, working full-time is not easy for me, but it’s also important to remember it’s not easy for able-bodied people either.
I have always been the sort of person who just gets on with it. I also believe that with technology making everything more accessible for disabled people, in most cases, our disability should not affect our ability to work. If you have any employer with an inclusive work culture, who is willing to support, understand and give you flexibility within the work place, then for sure you can work!
4. You returned to university to speak to students about entrepreneurship, and inspire them to start their own businesses. How did this make you feel and why do you think it is so important to encourage other disabled people to pursue any entrepreneurial aspirations they may have?
This gave me a sense of achievement and fulfilment. I believe that sharing experiences, whether positive or negative, helps others to follow their own passions and aspirations.
There is a general consensus that employment for disabled people is difficult to find, and arguably this could be due to the lack of inclusive employers. This is what makes the entrepreneurial world an attractive proposition for disabled people – it is flexible, offers them ability to work around their needs, and also avoids the hardship of being in a culture that is not disability confident.
5. You ventured into self-employment and founded AbleMove. Why was this so important to you?
I have always wanted to start my own business. When I realised I could create a product to make travel more assessible for disabled people, it was a no-brainer decision for me.
When you’re working on something you’ve created and can see the life-changing benefits, there is a real feeling of fulfilment.
Winning the award gave me a sense of personal achievement and recognition. It gave me a fresh perspective on developing my own business and the benefits it can provide versus working for a large company.
The prize money and a business deal with easyGroup Ltd enabled me to give up my full-time job in order to pursue my own business. This allowed me greater flexibility regarding how I manage my disability.
7. Prior to winning the award, you had to move home and rent within the private sector. What challenges did this present?
The challenges with the private rent sector (PRS) are vast, especially given almost 85-90% of PRS homes are inaccessible for wheelchairs.
After applying for the Stelios Awards, I was told I had to move out of a good sized two bed apartment due to the landlords requiring their property back. Having lived there for 3 and a half years, it was time to start the dreaded challenge of finding a needle in a haystack.
It’s purely pot luck if you can find an accessible house to move into straight away that doesn’t need any adapations.
After fighting with the council and various estate agents, we eventually managed to find a property on rightmove. Now, when moving home I need to consider carers since I rely on them throughout the day. My main PA (personal assistant) was unable to continue working for me, and so I had to re-jig and was then only able to maintain one PA.
Finding an accessible property and then having to manage your care situation around it is extremely stressful, tiring and irritating. On top of this, I was working full-time, getting the business of the ground, doing weekly exercises and training for the Great Britain Shooting Talent and Development Squad.
8. Can you tell us about your invention, the easyTravelseat. What is it and how does it benefit disabled people?
My travelling experiences involve being manhandled from wheelchair to aisle chair and then manhandled again onto the aircraft, which is highly undignified and uncomfortable. I therefore sought to create something that would help me travel in a more comfortable and dignified manner.
The easyTravelseat is a sling/seat combination that is designed to work as an in-situ piece of equipment. It is placed in your wheelchair, and you then remain seated in the easyTravelseat until you reach your destination.
For instance, when flying, you would remain comfortably and securely seated within the easyTravelseat for your entire journey through the airport, onto and during your time on the aircraft and off again.
Once I created it, I realised the many benefits it offers disabled people. It allows users to travel in a more safe, dignified and comfortable way, on all modes of transport. Furthermore, it opens up leisure opportunities such as canoeing, kayaking, skiing and so on. The easyTravelseat enables users to be transferred quickly and easily without having to be manhandled. The user is comfortably seated with their own cushion, a gel pad or foam.
9. Where did the idea for the easyTravelseat stem from, and what did the development process involve?
The development process involved researching the types of equipment already available, and the demand for such a product. I conducted market research to determine whether wheelchair-users would find the product useful. Then we identified a concept and progressed to prototyping in order to test how the seat would work. We then moved on to the point of manufacturing the seat and getting the required medical marking and approvals in place. During this process we had been working initially with airports around the lifting side of the device, including our sling manufacturer and then an airline. We started production in February 2019.
10. Does the easyTravelseat cater for disabled people of all shapes and sizes?
The easyTravelseat will cater for the majority of disabled users with the exception of very young children, bariatric passengers or people with extreme contoured seating.
11. How does the easyTravelseat compare with similar products on the market, such as the ProMove sling or the NEPPT Transfer Evacuation Sling Seat?
The difference with the easyTravelseat is the specific design and application of use for aircraft, whilst ensuring passenger comfort. It allows users to be moved around the aircraft, including during an emergency, and to then disembark the aircraft in a much safer, dignified and comfortable manner. All other slings are designed to be removed and offer no protection or comfort when in-situ.
12. What other assistance do you think airlines could and should be offering to disabled passengers?
I think the most important area airlines should be focusing on in the immediate is the loading of wheelchairs, both electric and manual, to prevent damage. It also concerns me the people on the ground lifting these wheelchairs are at risk of causing serious damage to themselves. There is industry equipment to load wheelchairs onto an aircraft without having to manually lift a wheelchair. This would help the loaders and reduce the amount of damage to both the chairs and the airport staff. Also, a secure area in the hold may also be advantageous to prevent luggage damaging wheelchairs during turbulence.
I also think the UK should be pushing (as Canada has done successfully) the airlines to provide free tickets for a carer when flying with a disabled person. After all, the airlines make it a necessary requirement for WCHC passengers who cannot move without any support to fly with a personal assistant/carer.
Airlines should also be addressing the toileting situation inside the cabin too. It is currently impossible for the majority of disabled passengers to access the toilet whilst flying.
Regarding hidden disabilities, there are those who are much more calm when they are surrounded by objects which are all different colours.
Long term, all airlines should be looking to allow wheelchair-users to remain seated in their wheelchair, inside the cabin, during the flight.
13. What does the future hold for you and your business?
The future is bright for easyTravelseat! We are off to a steady start with interest across the globe. We believe in an accessible aviation world and are able to provide an immediate solution to help reduce some of the significant problems with maintaining safety, dignity and comfort when flying with a wheelchair.
We will now look to ensure easyTravelseat is easily accessible in as many countries across the globe as possible in the coming years.
Research commissioned by the Department for Work and Pensions (DWP) found that from 2011 to 2014, the proportion of workers aged 50 and older rose from 21% to 24%. The same ONS survey estimated that, by 2030, the number of people in the UK aged 65 and older will have increased by 50%, while those aged 20 to 30 would see a 4% decline.
This figure may vary depending on a variety of circumstances including the location, industry, policies and more. One thing’s for sure though; these changes will have far-reaching consequences across society, including the workplace.
With this in mind, it’s even more important to acknowledge and invest in supporting the changing workforce. Organisations are now in competition for the best and most experienced staff.
In this article, we explore what this means for businesses. We identify areas where employers can further support their older workers and offer some tips for ensuring their wellbeing.
Older Workers and Wellbeing
Anyone that’s been in employment in the last five to ten years would no doubt have noticed the increased focus on employee wellbeing. It’s the trending buzzword relating to the health and safety of not only the physical but also the mental health of workers.
To keep your workforce happy (and by extension increase productivity), you should consider investing in both physical and mental support.
To achieve this for your older workers, you need to first consider what they need and want in the workplace. Research conducted by CIPD at the Centre for Ageing Better showed that just like younger workers, they’d also like a job that is meaningful, stimulating and sociable.
A study by Ageing Better shows employers report greater levels of loyalty, reliability and commitment from their older workers compared with younger colleagues. Their experience in life and in their sector places them in an ideal position to manage themselves and other members of staff.
According to a survey by CIPD, the number one benefit of age diversity in the workplace is knowledge-sharing. They found that 56% of HR decision-makers believe that older workers transfer vital knowledge and skills.
Having a diverse workforce, not only in age but also race, religion and (dis)ability can also help to solve complex work problems. By bringing a mix of ideas, skills, strengths, experiences and backgrounds, you’re ensuring that strengths and weaknesses are balanced.
Finally, because of the estimated increase of over 50 year-olds in the general population in the UK, age diversity in the workplace can help to match the profile of your customers which will, in turn, improve the product or services you offer.
4 Tips for Supporting Older Workers
• Be open to flexibility: This is important to workers of all ages. It helps them to create a balance between their work and social life. Specifically, for older workers, it also provides a transition period to retirement. Remember to inform your staff of their right to make flexible working requests.
• Mentoring: By allowing your older workers to mentor younger employers, they’re able to pass on their experience, work habits and attitudes towards work.
• Training: Some employers are concerned about this investment because they worry that they’re investing in someone who may soon retire. However, it’s worth noting, training these workers means as well as keeping their skills sharp, they’ll be more employable.
• Employee Assistance Programmes: As well as retirement benefits, you should also be supporting them while they’re still at your company. Offering employee assistance programmes gives workers access to support that’ll help them deal with personal problems that might impact their work performance or their health and wellbeing.
On top of all this, you should also be conducting regular one-to-one meetings to review their performance, offer feedback and keep on top of any issues.
My thanks to David Price from Health Assured for providing this guest post.
Working full time is the goal for most of us – to earn our own money, pay the bills, put our skills and knowledge to good use, in addition to contributing to society. But for those who deal with chronic pain each and every day, this is not so easy to achieve.
Living with chronic pain can be debilitating, difficult to manage, incredibly stressful and for some it is sadly all-consuming. It is hard to focus on anything other than how you feel, thereby potentially affecting your personal and professional life, as well as your mental health and wellbeing.
No one wants to be out of work due to ill health. Aside from the obvious financial gain; work provides a purpose, opportunities to socialise, integrate with peers and further your own personal development.
Whether you commute or work from home, it’s important to find the method of pain management that suits you. Chronic pain can manifest in many ways, and as such there are several forms of treatment including medication, heat pads and even CBD oil.
Begin your day with strength and positivity: Try listening to motivational podcasts before bed or first thing in the morning. This will aid your mental health and encourage determination and perseverance to help you make it through the day.
Set the alarm: Seems obvious, right? But in all seriousness, this is an important step. An alarm will provide that extra nudge to get you out of bed. Position the alarm out of reach so that you’re unable to hit the snooze button or knock it over in frustration.
The earlier you start the day, the more time you have to prepare yourself physically and mentally. Rushing around will only add extra stress and inevitably exacerbate your chronic condition.
Learn to stretch: You might stretching is a bad idea for anyone living with chronic pain. However, in consultation with doctors and specialists, it can be of great benefit to devise a plan to stretch and exercise each day.
Stay as mobile and active as possible, but be sure to reserve energy and rest when necessary. Don’t force yourself to work through unbearable pain. This is counter-productive.
Comfort: Pay attention to your working environment – introduce furnishings and features for optimum comfort. Think about seating, cushions, footrests/stools and massagers.
Consider consulting an occupational therapist who will help to make your working life as easy as possible. If that means adding eight cushions of varying
firmness to your office chair, then do it!
Planning and preparation will result in good performance at work, despite constant chronic pain. Of course, it is sadly the case that many sufferers will never be completely rid of pain. But in order to work, and to work to the best of your ability, you need to formulate an individually tailored method of management. There is no ‘one fits all’ solution.
While some progress is being made to accommodate disabled employees, there is still much more that could be done to help us to feel comfortable, confident and able to perform most effectively, at work.
This post highlights three crucial changes that need to take place to promote inclusivity within the workplace.
1. Better help for those with hidden disabilities:
It is evident that wheelchair-users, like myself, need physical modifications such as accessible desks, ramps at entrances and exits, and lifts. But, due to a lack of information and awareness, those with hidden disabilities are still being denied access to the minor adaptations required to enable their working day.
For example, some people with debilitating anxiety conditions can find it incredibly difficult to work in an open-plan environment. Providing a private space or even desk screening can resolve this issue, thereby enabling optimum productivity. However, some businesses would rather maintain their open plan aesthetic than implement these simple adaptations in order to assist disabled employees.
2. Inclusive bonding activity and rewards:
There is currently a lot of focus on workforce team bonding activities, since this has been found to be a successful method of encouraging inclusion. However, many of these activities are physically demanding ie. assault courses and river rafting – totally unsuitable for wheelchair-users and those with physical disabilities.
Of course, there are many more inclusive bonding activities, accessible to everyone regardless of ability. For instance, hosting a Weekly Quiz would unite team members whilst also providing a stimulating, competetive challenge. Then there are shared, adrenaline-fuelled experiences like skydiving, indoor skydiving and sailing. All of these sports cater for people with a diverse range of disabilities.
Believe it or not, bonding activities can be tailored to the needs of the individual, and made more inclusive through various adaptations.
So-called ‘escape rooms’ are increasing in popularity. Players are locked in and must work together as a team, solving puzzles and riddles in order to escape before their allotted time is up! These ‘escape rooms’ are fun, exciting and can be easily adapted for those with disabilities.
If you are feeling particularly creative, you can following the guidance here and devise your own unique, inclusive bonding experience. This way, you can ensure it will be perfect for all involved.
3. The opportunity to prove ourselves, just like everyone else:
Though it should really go without saying; as disabled people, we want the opportunity to prove ourselves, just like everyone else.
We don’t want token gestures from employers. Disabled people are skilled, talented, capable and willing to work hard. We can offer a unique perspective and want to prove our value as employees. We want to be there because we have a genuine contribution to make, and we want to be taken seriously in what we say and do professionally.
The important issue of workplace inclusion is something that requires immediate attention. Both employers and employees need clear access to information and education. Knowledge will promote confidence, which is essential for disabled people to access employment and for career progression.
36-year-old Scott Watkin, an eye care and vision development officer with the charity SeeAbility, is one of this years deserving recipients of the British Empire Medal.
Scott, who has learning disabilities and the eye condition keratoconus, is recognised for his tireless work in the learning disability community.
A dedicated ambassador, Scott began his career co-chairing the learning disability partnership board on the Isle of Wight. This led onto an influential role as co-national director for learning disabilities within the Department of Health. He also lectures at the University of Hertfordshire, focusing on eye care, vision and equal rights. However, he notes his work with SeeAbility as a major milestone.
1. Scott, could you please tell Disability Horizons readers a little about yourself and your disability?
I was born with Williams syndrome which is a learning disability. Apparently I am one in ten thousand! Some of my muscles can be quite weak and my coordination can be not great at times.
I went to a special school and teachers never really paid attention to me, and it meant I didn’t really get the grades I wanted to get. I was bullied too which made learning very hard.
It also means I am more likely to have vision problems and actually I was diagnosed with keratoconus which I’ve had two corneal graftoperations on. I have quite a difficult daily routine involving eye drops and contact lenses.
2. How does your learning disability and eye condition affect you, and how have you found working with a disability?
My learning disability only shows when I’m nervous or worried about something, otherwise I’m a very confident person. I just need a bit of support to do my job and I’ve been really lucky to be supported well at SeeAbility.
My vision varies, some days it’s ok some days really poor. But I’m always ready to work!
3. What adjustments have you and/or your employer had to make in order for you to do your job effectively?
If I don’t know a journey, my manager will meet me in London and we will continue the journey together. I know my way from the IOW to London very well having made the trip many times.
If my vision is really poor, we put all my information on yellow paper in Arial 16pt font. This helps me to read it better.
When I first started working, I had lots of support to make steps in my job. But for me it’s just being able to talk to someone when I need to, and that’s the case at SeeAbility. If I don’t need that then I just get on with my job and carry on!
4. How and why did you get involved with the charity SeeAbility?
I first met Paula Spinks-Chamberlain (Director of External Affairs) at the Department of Health. SeeAbility supported me through my keratoconus and then I did some work as an ambassador. After that I was offered a job!
5. Could you please explain the role you play within SeeAbility?
I’m an eye care and vision development officer and I make sure people with learning disabilities get good eye care. I travel around the country giving training sessions to people with learning disabilities and carers. I need to make sure we lobby government to make sure they understand that eye care for people with learning disabilities is really important.
People with learning disabilities are much more likely to have sight problems than other people. Not only that, but they are the least likely to get the eye care they need. We are working so that eye care professionals make reasonable adjustments but what we really need is a national eye care pathway so that everyone with a disability can access a sight test.
6. You are also on the board of Learning Disability England. What are your aims and objectives in this capacity?
I try and make sure people with a learning disability have a voice. People with learning disabilities need the same access to services as everybody else.
It’s about setting the direction of learning disabilities in England. Lobbying government and challenging the social care cuts. I need to make sure we do what we say we are going to do.
7. Why is it so important to you to campaign for people with learning disabilities?
Firstly, people with learning disabilities are much more likely to have sight problems than other people. Not only that, but they are the least likely to get the eye care they need. We are working so that eye care professionals make reasonable adjustments but what we really need is a national eye care pathway so that everyone with a disability can access a sight test.
Secondly, people with learning disabilities deserve to have their voice heard. We deserve the same opportunities as everyone else as we have so much to offer. We just need the chances to shine.
8. What do you think are the main issues that require attention and improvement?
We need to stop the social care cuts and get a good eye care pathway down for people with learning disabilities so they can get the right eye care!
We need good annual health checks.
And to make sure the government take people with learning disabilities seriously and listen to what they want. For example, most people with learning disabilities want to work, and we just need employers to give us chance so we can achieve what others can have a good life.
9. Congratulations on being awarded a British Empire Medal in the New Year 2018 Honours list. How does it make you feel to be recognised for your achievements?
I never thought I’d be recognised in this way, it’s a real big honour. I’m glad my work is being recognised nationally because it’s really important. It sends a message to all the eye care professionals that I work with, they need to know how important eye care for people with disabilities is.
10. Finally, what tips would you offer anyone like yourself with a similar disability, who is seeking employment?
Don’t stop trying to find employment. Don’t be afraid to say you have a learning disability and it’s ok to ask for reasonable adjustments. You will have so many positives to bring to any role and don’t forget that, you are actually very reliable, more than other people!
I’d like to thank Scott Watkin for taking the time to speak with me.
I recently got chatting with a lovely lady called Rebecca, who contacted me after reading my blog.
Rebecca, who has cerebral palsy, is high-achieving, ambitious and incredibly interesting to talk to.
Consequently, I thought it would be beneficial for you guys to learn more about Rebecca, her views and how she manages life with a physical disability…
1. What is your disability and how does it affect you?
I have Ataxic Cerebral Palsy, which affects my four limbs and means that I use an electric wheelchair for getting around both inside the house and for outside activities in my day-to-day life. I also have a visual impairment called Nystagmus, which prevents me from going out unaccompanied as I sometimes struggle to see steps and kerbs in the street. My disability affects my life as I require 24 hour care.
2. What is the worst thing about living with your disability?
The worst thing is the stigma and negative attitudes that still surround disability. For example, strangers often make assumptions about my mental capabilities and underestimate my intelligence. However, I am learning to become resilient through my experience of this, and have developed coping mechanisms.
3. What, if any, are the positives to having a disability?
The free carer ticket to gigs/festivals/theatre/talks is a bonus! I also value my electric chair and the feeling of acceleration when I drive fast. On a more serious note, I view the fact that I feel I have a unique perspective on the world as a result of my disability as a positive. I have a greater tolerance of difference due to the empathy and understanding that my disability has taught me.
4. How do you feel about the term ‘disability’? Do you refer to yourself as having a disability or do you prefer another term, such as differently abled?
I used to physically jump at the word ‘disability’ as well as ‘wheelchair’ and ‘handicap’. This was because hearing myself being described as disabled hit home the fact that other people viewed and labeled me in this way. It made me feel as if my disability was my main or only attribute. This all changed when I attended counseling sessions in my early 20’s, where I was encouraged to unpack the meaning of these words and confront why they prompted a physical reaction from me. It is still the case that disability will never be my favourite word, but I’m now comfortable enough to describe myself in that way to others.
5. Do you feel under-represented in the media? If so, what changes would you like to see?
I can understand why some people would feel under-represented, and I agree changes do need to be made. But in my opinion, these changes reside in discussion, ideas and inclusion rather than purely exposure.
6. Are you a leader or a follower?
I used to be a follower, afraid to voice my opinions. Now I am comfortable taking the role of the leader in certain social situations, i.e. with less confident friends I am able to guide the conversation to allow people to be heard. As well as this, I hope to lead with my ideas surrounding disability ethics and the research I am doing in this particular area.
7. Optimist, pessimist, realist or idealist?
I live in the most realistic way possible so that I am most connected with reality and grounded in my thoughts. To be too pessimistic can prevent us from progressing, whereas being overly optimistic can also be counterproductive to personal growth.
8. Are you easy going or high-maintenance? Would those who know you best agree?
I would say that I am easy going because I have learnt how to balance my own well-being so as not to allow myself to become too stressed out. Those who know me best would probably agree, but I imagine they would claim that I’m more high-maintenance when I have an important deadline to meet!
9. Are you more of an introvert or an extrovert?
This really depends on whom I am with. In my professional career as a counsellor it is my responsibility to be the facilitator who steers the conversation, and this doesn’t allow for me to be introverted. However I can still become shy around people that I struggle to connect with on a deeper level.
10. Are you more creative or logical?
I am more creative in my thoughts and my writing and in the way I can construct an argument in a debate.
11. You are currently studying Philosophy at Cambridge University – why did you choose that subject in particular?
I have been fascinated by the world around me from a young age with my intuitive questioning of values and beliefs. This then developed when I embarked on a short course to find out more about the subject, which then inspired me to study philosophy at a higher level. What I like about philosophy most is that it’s a never-ending endeavour; there is always more to question, learn and explore. Philosophy can help to find new ways to think about old problems and with considering things from different perspectives, to overcome many of the hurdles that we encounter in our everyday lives.
12. What difficulties have you faced whilst at University, resulting from your disability?
Having to deliver presentations has been difficult for me, but luckily the University allowed me adapt my assessments, and have been really accommodating. One of my personal assistants delivered this presentation and I was able to answer class questions afterwards. I also require a personal assistant to write down my thoughts, and this can sometimes take a long time because conversations can be misinterpreted. For this reason, I always request the option of extra time because it can take longer for me than for an able-bodied student to formally express my thoughts in an assignment.
13. What do you hope to do following completion of your degree?
I am hoping to continue studying and develop my qualifications, embarking on a postgraduate course that combines philosophy and mental health.
14. Are you the type of person who always knew, from an early age, what job you wanted to pursue?
Yes, from about the age of 10 I remember hearing of people’s difficulties and wanting to help them by giving them advice at the time! This then developed into aspiring to become a qualified counsellor.
15. What is your ultimate ambition in life?
To gain as much knowledge and wisdom as possible to discuss new ideas and create meaningful change.
16. Bucket list: Can you list your top 5 goals?
I took some time to contemplate this question because I’ve never had a bucket list as such, but I’ve managed to come up with 5 things that are important to me:
1. Experience something daring in nature – i.e. wheelchair tree-top climbing
2. Using my counseling skills to change someone’s life for the better
3. Learn more about the psychiatry side to mental health
4. Finish reading a book in its entirety!
5. Finish my dissertation
17. If you won the Euromillions, what would you do with the money?
I would first of all build my own custom-made cabin in the forest. I would also double my betting stakes. (I do now and again enjoy a little flutter on the horses and football!) Although overall I am pretty content with my life how it is now.
18. Where is your favourite place in the world?
I really love spending time by the weeping willows in Newnham, Cambridge. These trees overlook the River Cam which makes it a very tranquil spot, where I feel safe and at peace.
19. Do you believe in ghosts, spirits and the like?
I have heard many stories about spirits and the afterlife that have led me to believe, or at least be open to the idea.
20. If a pill existed that could completely cure you of your disability, would you choose to take it, and why?
No, simply because I wouldn’t be me any more. And I wouldn’t have experienced the same things if I had been able-bodied. The only thing I would perhaps alter is the fact that I don’t get to spend much time on my own.
I’d like to thank Rebecca Sherwood for taking the time to answer my questions.
What do YOU think of Rebecca’s responses? how would YOU answer these questions? Leave and comment and let me know!
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