Interview | Scott Watkin: SeeAbility

36-year-old Scott Watkin, an eye care and vision development officer with the charity SeeAbility, is one of this years deserving recipients of the British Empire Medal.

Scott, who has learning disabilities and the eye condition keratoconus, is recognised for his tireless work in the learning disability community.

A dedicated ambassador, Scott began his career co-chairing the learning disability partnership board on the Isle of Wight. This led onto an influential role as co-national director for learning disabilities within the Department of Health. He also lectures at the University of Hertfordshire, focusing on eye care, vision and equal rights. However, he notes his work with SeeAbility as a major milestone.


1. Scott, could you please tell Disability Horizons readers a little about yourself and your disability?

I was born with Williams syndrome which is a learning disability. Apparently I am one in ten thousand! Some of my muscles can be quite weak and my coordination can be not great at times.

I went to a special school and teachers never really paid attention to me, and it meant I didn’t really get the grades I wanted to get. I was bullied too which made learning very hard.

It also means I am more likely to have vision problems and actually I was diagnosed with keratoconus which I’ve had two corneal graftoperations on. I have quite a difficult daily routine involving eye drops and contact lenses.

2. How does your learning disability and eye condition affect you, and how have you found working with a disability?

My learning disability only shows when I’m nervous or worried about something, otherwise I’m a very confident person. I just need a bit of support to do my job and I’ve been really lucky to be supported well at SeeAbility.

My vision varies, some days it’s ok some days really poor. But I’m always ready to work!

3. What adjustments have you and/or your employer had to make in order for you to do your job effectively?

If I don’t know a journey, my manager will meet me in London and we will continue the journey together. I know my way from the IOW to London very well having made the trip many times.

If my vision is really poor, we put all my information on yellow paper in Arial 16pt font. This helps me to read it better.

When I first started working, I had lots of support to make steps in my job. But for me it’s just being able to talk to someone when I need to, and that’s the case at SeeAbility. If I don’t need that then I just get on with my job and carry on!

4. How and why did you get involved with the charity SeeAbility?

I first met Paula Spinks-Chamberlain (Director of External Affairs) at the Department of Health. SeeAbility supported me through my keratoconus and then I did some work as an ambassador. After that I was offered a job!

5. Could you please explain the role you play within SeeAbility?

I’m an eye care and vision development officer and I make sure people with learning disabilities get good eye care. I travel around the country giving training sessions to people with learning disabilities and carers. I need to make sure we lobby government to make sure they understand that eye care for people with learning disabilities is really important.

People with learning disabilities are much more likely to have sight problems than other people. Not only that, but they are the least likely to get the eye care they need. We are working so that eye care professionals make reasonable adjustments but what we really need is a national eye care pathway so that everyone with a disability can access a sight test.

6. You are also on the board of Learning Disability England. What are your aims and objectives in this capacity?

I try and make sure people with a learning disability have a voice. People with learning disabilities need the same access to services as everybody else.

It’s about setting the direction of learning disabilities in England. Lobbying government and challenging the social care cuts. I need to make sure we do what we say we are going to do.

7. Why is it so important to you to campaign for people with learning disabilities?

Firstly, people with learning disabilities are much more likely to have sight problems than other people. Not only that, but they are the least likely to get the eye care they need. We are working so that eye care professionals make reasonable adjustments but what we really need is a national eye care pathway so that everyone with a disability can access a sight test.

Secondly, people with learning disabilities deserve to have their voice heard. We deserve the same opportunities as everyone else as we have so much to offer. We just need the chances to shine.

8. What do you think are the main issues that require attention and improvement?

We need to stop the social care cuts and get a good eye care pathway down for people with learning disabilities so they can get the right eye care!

We need good annual health checks.

And to make sure the government take people with learning disabilities seriously and listen to what they want. For example, most people with learning disabilities want to work, and we just need employers to give us chance so we can achieve what others can have a good life.

9. Congratulations on being awarded a British Empire Medal in the New Year 2018 Honours list. How does it make you feel to be recognised for your achievements?

I never thought I’d be recognised in this way, it’s a real big honour. I’m glad my work is being recognised nationally because it’s really important. It sends a message to all the eye care professionals that I work with, they need to know how important eye care for people with disabilities is.

10. Finally, what tips would you offer anyone like yourself with a similar disability, who is seeking employment?

Don’t stop trying to find employment. Don’t be afraid to say you have a learning disability and it’s ok to ask for reasonable adjustments. You will have so many positives to bring to any role and don’t forget that, you are actually very reliable, more than other people!


I’d like to thank Scott Watkin for taking the time to speak with me.

My interview with Scott was originally published by Disability Horizons

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20 Questions with…

Rebecca who has cerebral palsy

I recently got chatting with a lovely lady called Rebecca, who contacted me after reading my blog.

Rebecca, who has cerebral palsy, is high-achieving, ambitious and incredibly interesting to talk to.

Consequently, I thought it would be beneficial for you guys to learn more about Rebecca, her views and how she manages life with a physical disability…


1. What is your disability and how does it affect you?

I have Ataxic Cerebral Palsy, which affects my four limbs and means that I use an electric wheelchair for getting around both inside the house and for outside activities in my day-to-day life. I also have a visual impairment called Nystagmus, which prevents me from going out unaccompanied as I sometimes struggle to see steps and kerbs in the street.  My disability affects my life as I require 24 hour care.

2. What is the worst thing about living with your disability?

The worst thing is the stigma and negative attitudes that still surround disability. For example, strangers often make assumptions about my mental capabilities and underestimate my intelligence. However, I am learning to become resilient through my experience of this, and have developed coping mechanisms.

3. What, if any, are the positives to having a disability?

The free carer ticket to gigs/festivals/theatre/talks is a bonus! I also value my electric chair and the feeling of acceleration when I drive fast. On a more serious note, I view the fact that I feel I have a unique perspective on the world as a result of my disability as a positive. I have a greater tolerance of difference due to the empathy and understanding that my disability has taught me.

4. How do you feel about the term ‘disability’? Do you refer to yourself as having a disability or do you prefer another term, such as differently abled?

I used to physically jump at the word ‘disability’ as well as ‘wheelchair’ and ‘handicap’. This was because hearing myself being described as disabled hit home the fact that other people viewed and labeled me in this way. It made me feel as if my disability was my main or only attribute. This all changed when I attended counseling sessions in my early 20’s, where I was encouraged to unpack the meaning of these words and confront why they prompted a physical reaction from me. It is still the case that disability will never be my favourite word, but I’m now comfortable enough to describe myself in that way to others.

5. Do you feel under-represented in the media? If so, what changes would you like to see?

I can understand why some people would feel under-represented, and I agree changes do need to be made. But in my opinion, these changes reside in discussion, ideas and inclusion rather than purely exposure.

6. Are you a leader or a follower?

I used to be a follower, afraid to voice my opinions.  Now I am comfortable taking the role of the leader in certain social situations, i.e. with less confident friends I am able to guide the conversation to allow people to be heard. As well as this, I hope to lead with my ideas surrounding disability ethics and the research I am doing in this particular area.

7. Optimist, pessimist, realist or idealist?

I live in the most realistic way possible so that I am most connected with reality and grounded in my thoughts. To be too pessimistic can prevent us from progressing, whereas being overly optimistic can also be counterproductive to personal growth.

8. Are you easy going or high-maintenance? Would those who know you best agree?

I would say that I am easy going because I have learnt how to balance my own well-being so as not to allow myself to become too stressed out. Those who know me best would probably agree, but I imagine they would claim that I’m more high-maintenance when I have an important deadline to meet!

9. Are you more of an introvert or an extrovert?

This really depends on whom I am with. In my professional career as a counsellor it is my responsibility to be the facilitator who steers the conversation, and this doesn’t allow for me to be introverted.  However I can still become shy around people that I struggle to connect with on a deeper level.

10. Are you more creative or logical?

I am more creative in my thoughts and my writing and in the way I can construct an argument in a debate.

11. You are currently studying Philosophy at Cambridge University –  why did you choose that subject in particular?

I have been fascinated by the world around me from a young age with my intuitive questioning of values and beliefs. This then developed when I embarked on a short course to find out more about the subject, which then inspired me to study philosophy at a higher level. What I like about philosophy most is that it’s a never-ending endeavour; there is always more to question, learn and explore. Philosophy can help to find new ways to think about old problems and with considering things from different perspectives, to overcome many of the hurdles that we encounter in our everyday lives.

12. What difficulties have you faced whilst at University, resulting from your disability?

Having to deliver presentations has been difficult for me, but luckily the University allowed me adapt my assessments, and have been really accommodating. One of my personal assistants delivered this presentation and I was able to answer class questions afterwards. I also require a personal assistant to write down my thoughts, and this can sometimes take a long time because conversations can be misinterpreted. For this reason, I always request the option of extra time because it can take longer for me than for an able-bodied student to formally express my thoughts in an assignment.

13. What do you hope to do following completion of your degree?

I am hoping to continue studying and develop my qualifications, embarking on a postgraduate course that combines philosophy and mental health.

14. Are you the type of person who always knew, from an early age, what job you wanted to pursue?

Yes, from about the age of 10 I remember hearing of people’s difficulties and wanting to help them by giving them advice at the time! This then developed into aspiring to become a qualified counsellor.

15. What is your ultimate ambition in life?

To gain as much knowledge and wisdom as possible to discuss new ideas and create meaningful change.

16. Bucket list: Can you list your top 5 goals?

I took some time to contemplate this question because I’ve never had a bucket list as such, but I’ve managed to come up with 5 things that are important to me:

 1. Experience something daring in nature – i.e. wheelchair tree-top climbing

2. Using my counseling skills to change someone’s life for the better

3. Learn more about the psychiatry side to mental health

4. Finish reading a book in its entirety!

5. Finish my dissertation

17. If you won the Euromillions, what would you do with the money?

I would first of all build my own custom-made cabin in the forest. I would also double my betting stakes. (I do now and again enjoy a little flutter on the horses and football!) Although overall I am pretty content with my life how it is now.

18. Where is your favourite place in the world?

I really love spending time by the weeping willows in Newnham, Cambridge. These trees overlook the River Cam which makes it a very tranquil spot, where I feel safe and at peace.

19. Do you believe in ghosts, spirits and the like?

I have heard many stories about spirits and the afterlife that have led me to believe, or at least be open to the idea.

20. If a pill existed that could completely cure you of your disability, would you choose to take it, and why?

No, simply because I wouldn’t be me any more. And I wouldn’t have experienced the same things if I had been able-bodied. The only thing I would perhaps alter is the fact that I don’t get to spend much time on my own.


I’d like to thank Rebecca Sherwood for taking the time to answer my questions.

What do YOU think of Rebecca’s responses? how would YOU answer these questions? Leave and comment and let me know!

If you found this blog post interesting, please do share so that others can see it too – thank you!

My Top 10 Disabled Celebs | The Girls

The Girls:

My latest article for Disability Horizons showcases my pick of the top 10 disabled FEMALE celebrities. Because, in the wise words of Beyonce, girls run the world!

*Last year, Disability Horizons compiled their top 10 disabled celeb’s, including both men and women. To avoid repetition, I have not included any of the women from that previous article.


There is a great deal of ongoing discussion and debate around the inclusion and representation of disabled people within the media. Put simply, there is not enough diversity. Still, in 2017, the vast majority of British ‘celebrities’ are able-bodied.

However, we are seeing the emergence of more and more disabled people on our television screens and in the public eye. But, how many can you name? When contemplating this very question, I realised that most of those who immediately came to mind were male – Stephen Hawking, Warwick Davies, Alex Brooker, Adam Hills, Ade Adepitan and Jonnie Peacock, to name a few.

So what about the ladies?…


Hannah Cockroft MBE

Hannah, who has cerebral palsy, suffered two cardiac arrests within 48 hours of birth, which affected two parts of her brain. She was left with balance, mobility and fine motor impairment.

But this has most certainly not held her back. She is a gold medal-winning Paralympic wheelchair racer and 10 times world champion. In 2012 she became the first Paralympian to break a world record in the London Olympic Stadium for the 100 metres T34.

In 2014 she won the Sport Relief edition of Strictly Come Dancing with professional dancer Pasha Kovalev. That same year she launched 17 Sports Management Limited, a company representing disabled athletes.

Hannah continued her reign of success at the 2016 Paralympics in Rio where she won three gold medals.

Katie Piper

The victim of a vicious acid attack in March 2008, Katie has endured more than 250 surgical procedures to date. She suffered full-thickness burns (where both layers of the skin are destroyed) and had to wear a face mask for 23 hours every day. She also swallowed some of the sulphuric acid, damaging her throat, and was blinded in her left eye.

In 2009, the former model shared her horrific ordeal in the Channel 4 documentary Katie: My Beautiful Face. She also established the Katie Piper Charitable Foundation, which supports those with severe burns and disfigurement injuries.

In addition, she is now a successful author, television presenter, magazine columnist and philanthropist. An inspiration to many, Katie married in 2015 and is currently expecting her second child.

Cerrie Burnell

Cerrie was born with no right forearm and is severely dyslexic. Since childhood, she has always refused to wear a prosthesis or hide her disability.

An all-round entertainer, Cerrie is an accomplished actress, singer, playwright, children’s author and TV presenter. Between 2002-2008, she appeared in Holby City, Eastenders, Grange Hill, The Bill and Comedy Lab. She then transitioned to presenting, working on The One Show, The Wright Stuff and CBeebies (Jan 2009 – April 2017).

But her first appearance on children’s television was met with controversy. Some claimed that the presence of someone with a physical disability like hers could scare young viewers. In response, Cerrie spoke candidly about her disability and how it’s important that children are exposed to differences, for which she was widely applauded.

She now regularly speaks out in favour of diversity and the inclusion of disabled people in the media. In fact, she recently took part in the Channel 4 documentary Diverse NationShe’s since reached an even wider audience by presenting all the swimming events for the Channel 4 and the 2012 Paralympics.

Named by The Observer as one of the top 10 children’s presenters of all time, Cerrie has also been declared, by The Guardian, as one of Britain’s 100 most inspirational women.

A supporter of many charities including body-confidence organisation Body Gossip, Cerrie now wants to focus on writing more children’s books and acting.

Francesca Martinez

Critically-acclaimed stand-up comedian Francesca Martinez first became prominent playing Rachel Burns in Grange Hill (1994-8). Since, she has starred in BBC shows Holby City, Doctors and Extras.

But it’s not her acting that she’s most well known for, it’s her comedy. With a self-deprecating sense of humour, Francesca, who has cerebral palsy, describes herself as “wobbly”. In 2000 she became the first female to win the prestigious Daily Telegraph Open Mic Award at the Edinburgh Festival. She was also named one of the 50 funniest acts in British comedy by The Observer.

Also a campaigner and activist, Francesca has organised many charity shows and is a patron of several charities, including Evenbreak, which helps pair disabled people with inclusive employers. She’s also an outspoken opponent of government welfare reform, in 2012 launching the campaign War on Welfare (WOW), which called for an end to disability benefit cuts. She later secured the first parliamentary debate for disabled people by disabled people.

In 2013 she won the Public Affairs Achiever of the Year Award and the following year was named one of Britain’s most influential women.

Her recent sell-out comedy tour was followed by a best-selling book, both titled WHAT THE **** IS NORMAL?! She is currently working on a feature documentary of the same name.

Cherylee Houston

Screen and theatre actress Cherylee was diagnosed with Ehlers-Danlos Syndrome type III (EDS) at the age 23. She has appeared in Doctors, The Bill, Holby City, Emmerdale and Little Britain.

Her most recent role is that of Izzy in Coronation Street, which she has played since 2010, and is the soap’s first disabled character to be played by a disabled actor.

Aside from acting, Cherylee established the Manchester-based youth project TripleC, which aims to make drama accessible to all. She has spoken out about a number of political issues too, including the Conservative cuts to disability benefits and the representation of disability in the media. She also continues to raise awareness of EDS.

Anne Hegerty

Better known as The Governess in the award-winning ITV quiz show The ChaseAnne has a form of autism. In 2005, after watching a documentary about Asperger’s Syndrome and identifying with the symptoms, Anne told her doctors she believes she has the disability. It took two years for her to be officially diagnosed, during which time she lost her job as a proof-reader, due to her inability to multi-task.

Unable to pay her bills, Anne was confronted by bailiffs on New Year’s Day in 2008. She later sought advice and assistance and is to this day in receipt of Disability Living Allowance. Around the same time, her social worker encouraged her to audition for The Chase and even paid her travel costs to get there.

She is now a highly successful television personality and professional quizzer, have participated in Mastermind, Fifteen to One and Brain of Britain. Anne also talks candidly about her life with Asperger’s Syndrome and how it affects her.

Jess Thom

Jess, a comedian and public speaker, was diagnosed with the neurological condition Tourette Syndrome in her early twenties, and also uses a wheelchair. She’s most widely recognised for her memorable appearance on Russell Howard’s Good News in October 2015. The interview garnered much attention and has subsequently been viewed more than 600,000 times on Youtube – you can check it out in our article on 10 awesome disability-related videos.

In 2010 she co-founded Touretteshero, a blog that documents what it’s like living with Tourettes, featuring articles and videos. Its first production, Backstage in Biscuit Land (2014), met with critical acclaim. It has since toured nationally and internationally.

She has appeared on various television and radio programs including The Late Late Show, This Morning and Fry’s Planet Word. In 2013 she also delivered a TED talk about the misconceptions of Tourette’s and the creative potential of tics. While admitting her Tourette’s presents challenges and has been met with discrimination, she prefers to “celebrate [its] creativity and humour.”

Jess is an outspoken advocate and campaigner for disabled people’s rights. Her work often draws attention to the environmental and social barriers that prevent inclusion. An opponent of the medical model of disability, Jess insists her Tourette’s is a source of creativity, her wheelchair allows her freedom, and she is disabled not by her body but by the inaccessible environment.

Libby Clegg

Libby is a Scottish Paralympic champion sprinter, having won gold and broken records. She has a deteriorating condition Stargardt’s macular dystrophy, leaving her with only slight peripheral vision in her left eye. She is registered blind and is an ambassador for the Royal Blind Charity.

She has represented Great Britain in the T12 100m and 200m races at the 2008 Summer Paralympics, and the T11 100m and 200m in 2016 at the Paralympic Games in Rio. She is also the 2012 IPC European Champion and 2013 IPC World Champion.

As if she isn’t busy enough, Libby is also a course tutor and ambassador for Ability Training (ability-training.com), offering accredited disability specific awareness courses for sports coaches and fitness professionals.

Along with her beloved guide dog Hattie, she is helping to educate dog owners on the importance of nutrition and health. Libby raises awareness of the essential part guide dogs play in the lives of those with visual impairment.

She was recently honoured in the 2017 New Year’s honours service when she was appointed MBE for her contribution to sport.

Sarah Gordy

Award winner Sarah, who has Down’s Syndrome, is best known for her role as Lady Pamela Holland in the 2010 BBC TV series Upstairs Downstairs. She has also appeared in Holby City, Call the Midwife and Doctors, as well as various short films, radio dramas, commercials and many theatre productions.

She most recently portrayed Orlando Quine in the BBC series Strike: The Silkworm, based on the books by J.K. Rowling.

She is an ambassador for Mencap and patron of Circus Starr, a performance group that does shows for disabled children. When not acting, she volunteers at her local British Heart Foundation charity shop.

Genevieve Barr

Star of the latest Maltesers advert, Genevieve was born deaf. Having never learned sign language, she lip reads, and is, in fact, a professional lip-reader for different organisations.

She had a major role in the 2010 BBC drama The Silence, and the previous year played a deaf nurse in the Channel 4 comedy, The Amazing Dermot. Following her Bafta and International Emmy Award nominations for The Silence, she went on to act in the BBC3 drama series The Fades, and Shameless on Channel 4.

A freelance disability consultant and public speaker, Genevieve works with the charities Hear the WorldAction on Hearing Loss and AFASIC – a charity for children with speech, language and communication difficulties. She also runs courses and workshops for disabled actors.


What do you think of my choices? Who would be in your top 10?

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